Discover and read the best of Twitter Threads about #sicklecellcrisis

Most recents (6)

Hey #CPP fam! Have any of you ever felt blackmailed or coerced into talking medication just to get your pain meds? Details will follow in the enclosed thread. 1/?
Iā€™m currently #inpatient for a #SickleCellCrisis and the morning attending talked with me in front of the nurse that instead of getting pain meds every two hours, It would be every three hours, but I would get some breakthrough doses so my pain doesnā€™t spiral out of control.
However, every time I asked for a dose, the orders werenā€™t in the system. So Iā€™ve been fighting for these extra doses ALL DAY LONG! I could tell that the nurse felt bad about it too. At shift change the orders STILL ARENā€™T IN THE COMPUTER! šŸ˜”šŸ¤¬šŸ˜¤
Read 6 tweets
Hey #CPP fam! Can someone please point me to the right direction? Iā€™m currently inpatient due to a #SickleCellCrisis and I usually get IV Benadryl because Iā€™m severely allergic to CHG and adhesive tapes. However the docs are only giving me oral meds which just isnā€™t working.
The allergic reaction I get is that my skin blisters with extremely intense itching to the point that it causes pain. The blisters are delicate and pop open with the slightest touch, even when rubbing against clothing and eventually everything scabs up.
I have photo documentation of the allergy, and the doctor is still refusing to give me IV Benadryl, citing protocol and hospital policy. My arms are scarred up from the last time this happened when I was admitted here. I called patient services and left a message.
Read 6 tweets
Dear #MedTwitter, you need a be more aware of the after effects of #MedTrauma. Intense research or questioning/constant second opinions doesnā€™t always mean hypochondria. Maybe someone was misdiagnosed one too many times which led to too many life threatening situations.
Constant over-explaining doesnā€™t mean that theyā€™re trying to make up a story. Maybe they just want to make sure that you have all the details to avoid misdiagnosis. Maybe they just want to make sure that you BELIEVE THEM.
These are just a few examples, but PTSD due to #MedTrauma is real and it greatly impacts people with chronic illnesses. I know because I have it myself. My last few health crises I diagnosed myself because I was constantly being misdiagnosed which even put my life at risk.
Read 22 tweets
Iā€™ll say it AGAIN for the people in the back... I DONā€™T WANT A ā€œCUREā€ FOR #SICKLECELLDISEASE! What I DO want is for our pain to be TREATED NOT IGNORED. I DONā€™T want to worry about the ER docs labelling me as a drug seeker out of IGNORANCE/BIGOTRY. 1/?
When I come to the ER, I want to be BELIEVED when I say Iā€™m having crisis pain. Followed by PROMPT AND EMERGENT administration of the dose of pain medication I NEED! Sickle Cell crises are an #ActualEMERGENCY and require immediate treatment! More time in pain = MORE COMPLICATIONS
The longer someone is in pain without relief, the more likely theyā€™ll need an admission into the hospital! Also, pain scales are garbage! Personally I measure my pain by my ability to function. If Iā€™m in the ER, Iā€™m not functioning!
Read 13 tweets
MALARIA Vs GENOTYPE AA

Here's why people with #genotypeAA are more prone to malaria:

The commonest malaria parasite (Plasmodium falciparum) loves plenty of blood & oxygen. Since AA is the perfect one with plenty of blood & oxygen, the parasite prefers AA blood.

RT
Studies show the following malaria susceptibility ratios, among children with different genotypes:

AA: 92.3%

AS: 5.1%

SS: 2.6%

Can you see the difference?
But be warned. Malaria is more harmful in persons with Genotype SS coz it can cause life-threatening #SickleCellCrisis.

This crisis doesn't occur in people with Genotype AA.
Read 3 tweets
Someone asked, "Are people with #GenotypeAA more prone to #Malaria?"
Let's quickly answer this.

A thread šŸ§µ

{Share to create awareness!} Image
Yes! People with #genotypeAA are more prone to malaria.

Reason:
The commonest parasite that causes #malaria (Plasmodium falciparum) loves plenty of #blood & #oxygen.

Since AA is the perfect #genotype with plenty of blood & oxygen, the parasite prefers AA blood.
There's a substance in blood called #hemoglobin. It carries oxygen to your tissues.

People with #genotypeAA have the perfect hemoglobin & hence plenty of oxygen in it. That's why malaria parasite prefers infecting them instead of people with AS & SS.

(The parasite wise abi!)
Read 6 tweets

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