Discover and read the best of Twitter Threads about #sicklecelldisease

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Today is #WorldSickleCellDay & we want you to know more about #SickleCellDisease.

It is an inherited blood disease, that causes the red blood cells to have sickle shape thereby, disrupting the free flow of blood & oxygen in the body. #KnowYourGenotype
People living with #SickleCellDisease, may often experience serious pains, weakness of the body, delayed growth & development.

They may also look pale due to shortage of blood
as a result of the sudden breakdown of red blood cells in the body .
Factors such as cold weather, too much exercise, tobacco smoke, lack of fluid, plane flights & high altitudes can contribute to the painful attacks (crisis), experienced by those living with #sicklecelldisease.
Read 6 tweets
You have heard people with sickle cell anemia talk about having "crisis".

Do you understand what "crisis" mean?

Let's take it back a bit. #SickleCell isn't an attack from your village people. The sequence of event that leads to this condition occurs on a molecular level. Far too tiny to see with your eye but let me explain

When you go to the lab to check your genotype, what they look for is a specific set of "proteins" that determine the genotype. This protein is called hemoglobin. Various ingredients combine to form this hemoglobin and they follow a specific sequence

Read 17 tweets
Today, 19th June is World Sickle Cell Day – a day of raising awareness!

#WorldSickleCellDay is the @UN's recognised day to raise awareness of sickle cell at a national and international level. On 22nd December 2008, the United Nations General Assembly...

...adopted a resolution that recognises sickle cell disease as a public health problem and “one of the world’s foremost genetic diseases.” The international awareness day is observed annually with the goal to increase public knowledge and an understanding of..
and the challenges experienced by patients and their families and caregivers.

#SickleCellDisease (SCD) is a group of blood disorders typically inherited from a person's parents. The most common type is known as Sickle Cell Anaemia (SCA). It results in...

Read 15 tweets
Why does the Pain Management Best Practices report matter? #1: It emphasizes that #pain is an enormous public health problem with profound individual & societal consequences. #aplanforpain (1/7 - continued)
#2: it points out that successful management of pain requires individualization of care. There is no one-size-fits-all. (2/7) #aplanforpain
#3 it confirms that best practice in pain management is multimodal, multidisciplinary, integrated... and calls out the lack of affordability of many nonpharmacological treatments. (3/7) #aplanforpain
Read 7 tweets
#TRIBECON begins #Pravara; felicitations to #AbhayBang @SearchGad & #sudarshan #VGKK for their inspiring work on #TribalHealth; @DrLahariya @whoindia among others felicitated
#abhayBang #healthsystem design for tribal communities need to be relooked for #UHC; strategies & schemes must adapt with local social & cultural context; recollects #Brainstorming with @DesirajuKeshav at @SearchGad leading to #ExpertCommittee #tribalhealth @TribalHealthIND
#TRIBECON #AbhayBang notes with happiness increasing interest in #tribalhealth research, yet this continues to be “off the beaten path”; congratulations to #pravara medical college in bringing this together; the proposed #Bandardhara declaration to improve #tribalhealth research
Read 81 tweets

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