Discover and read the best of Twitter Threads about #spooniechat

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The Dude is probably going to die very soon.

The #MemoryCare and our hospice service are managing his discomfort.

We told him that he doesn't have to worry about anything, that he can just rest as much as he needs to.

#Disability #SpoonieChat #Alz

<thread>
Waiting for someone to die is a strange thing, like a trip into a parallel universe, outside of time.

Without Penny our house is quiet.

And this moment is extra silent, like when you wake up to a thick blanket of snow in the middle of the night.
#Disability #SpoonieChat #Alz
I think it's the quiet that wakes me up on those snowy nights. Or is it the brightness of street lights and the moonlight bouncing up off the snow?

But that spell is always broken by shovels scraping, blowers growling, or car doors slamming.
#Disability #SpoonieChat #Alz
Read 66 tweets
I once had a primary care doc laugh in my face,

Tell me my abscess was just a pimple,

And then tell me to take my biologic medication...

Like, I could’ve conceivably died had I followed that advice over my gut. #DoctorsAreDickheads
That same doctor told me I couldn’t possibly be in 8/10 pain nearly every single day with no pain control but ibuprofen.

After having arthritis since I was in kindergarten.

And put a snooty note on my chart about me being a difficult patient. #DoctorsAreDickheads
Having to constantly be my own provider because licensed ones either don’t know about my rare conditions or think I’m full of shit is why I’m a patient activist.

It’s also why I have an MS in Healthcare Administration and worked for a major univ for a bit. #DoctorsAreDickheads
Read 16 tweets

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