Discover and read the best of Twitter Threads about #stillsickstillfighting

Most recents (5)

Hi, I'm Emily! I used to be a documentary filmmaker, teacher, environmental activist, artist, adventurer, wife, friend. Now I spend 22 hours a day in bed, too sick to interact w/ the world, too sick to watch films, much less make them.
#MillionsMissing
#MECFS
#LongCovid
1/ Selfie of me and my husband...Me filming with a camera an...Me standing on top of a mou...Selfie of me and my husband...
Over the past 3 years of the pandemic, millions more have joined me in this abyss of illness. We’ve been swept under the rug by the government, doctors, & society. We need research funding, financial support, treatments, a cure. We need our lives back.
#StillSickStillFighting
2/ Me sitting cross legged in ...MEAction infographic about ...
Thank you to @MEActNet & @itsbodypolitic for putting together this stunning protest on the National Mall today to help make the millions of us who have disappeared from our lives visible.
3/ Graphic art showing rows of...Photo from @caseygd43 of ro...
Read 7 tweets
The government's public health crisis may be officially ending, but for millions of people with ME/ Long Covid, we are #StillSickStillFighting.
#MillionsMissing 2023 is May 12th at the Washington Monument featuring an art installation & press conference. millionsmissing.org Graphic of the Washington M...
ME/CFS is a neurological disease with symptoms in all body systems that affects people of all ages and backgrounds. Most cases of ME/CFS are triggered by infection, often a viral infection. Before the pandemic, there were millions of people in the US living with ME/CFS.
Now, half of the Long COVID community meets the diagnostic criteria for ME/CFS. This more than quadrupled the number of people living with ME/CFS in the US.

#MECFS #LongCovid Over a red background featu...
Read 5 tweets
I have #MyalgicEncephalomyelitis. It’s been 9 days since @MEActNet’s #StillSickStillFighting action + I wanted y’all to have a glimpse of what #PEM is. Post-exertional malaise is the hallmark symptom for #pwME #MECFS, which half of #pwLC #LongCovid have
#NEISvoid (1/18) 9 MEAction Activists block ...
When we push ourselves beyond our energy envelope + don’t #StopRestPace, we end up with #PEM, where we “crash” and get much sicker. (I’m in the front here! We’re used to lying down, but getting up + down, lying on the hot pavement while chanting is really rough for us!) (2/18) MEActivists block the sidew...
So for this action, we prepared. I got good rest Frid-Sun. I was good about using mobility devices + prioritizing comfort for transit + lodging. I took all my meds (even supplements!) when I was supposed to, put on sunscreen, drank water. Look how rested and ready! (3/18) Rikki stands in a red “Stil...
Read 19 tweets
I created this reel to tell my story of viral-triggered #MECFS and why I fight for a national emergency declaration with @MEActNet for #MECFS and #LongCovid :
instagram.com/reel/Cisx1oeDG…

Here's a thread of each still photo telling my story, for accessibility purposes: 1/
3,087 days ago I got a virus and I never got better.

2/ #MillionsMissing #MECFS Alison is a white woman wit...
Years later, I was diagnosed with #MyalgicEncephalomyelitis / Chronic Fatigue Syndrome. At that time (pre-pandemic), it was estimated up to 2.5 million Americans had ME/CFS.

3/ #MECFS Alison is a white woman wit...
Read 16 tweets
@Phil_Lewis_ For those looking to better themselves now that the ‘pandemic is over’ please take a look at Tollovid. Same 3CLpro inhibitor mechanism Pfizer’s Paxlovid, but natural dietary supplement. Data in acute and LongCOVID $TOMDF

researchgate.net/publication/36…
@Phil_Lewis_ Tollovid rescuing Paxlovid Rebound

researchgate.net/publication/36…
Read 5 tweets

Related hashtags

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3.00/month or $30.00/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!