Discover and read the best of Twitter Threads about #syringomyelia

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As #InvisibleDisabilitiesWeek winds down, allow me to explain my condition. #Syringomyelia (sear-in-go-my-eelia) is when fluid-filled cysts form in the centre of the spinal cord, hollowing out the cord and compressing/damaging the spinal cord and nerves in that area.
This cyst is called a syrinx (sear-inks).
These are my MRI images from 2005/6, after my first surgery but before my second. I have two syrinxes: the wider from the 4th cervical vertebra to the 1st thoracic, and the narrower from my 2nd thoracic to the 11th (C4-T1 and T2-T11). ImageImage
Syringomyelia causes a variety of symptoms that can vary from person to person. Mine include widespread pain (including burning, aching, stabbing, pins and needles), difficulty sensing temperature with my hands & feet, muscle cramps & spasms, muscle weakness, & localized numbness
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