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Another glimpse into NIH RECOVER study. This also means more data for Yale LISTEN study as they use @hugohealth @kindred_health to gather medical records. I’m learning a lot about what is capturing effective data & what is missed. My case made researchers aware of gaps.#LongCOVID 
2/ during the 6 minute walk test, they realize @NIH provided no space for notes or to identify gait. Within 3 minutes, they noticed me tipping, gait instability (when I noted vision and burning pain in my head and nausea). None of that is captured. Yet, exertion amplified neuro
3/ This has been common - she said it looked like a stroke. Exercise stress test said I looked like altitude sickness from high elevation mountain climbers. Both witnessed changes in speech. NIH data collection doesn’t allow for capturing these crucial puzzle pieces in their data
