Discover and read the best of Twitter Threads about #undiagnosed

Most recents (3)

Millions are missing
And the cooper’s wife is too
So we hold our silent vigil
For a girl in a gown too blue
Lost in halls and hospitals
A silver talisman bears true
The diagnosis they doubted
With “Maybe it’s just you?”
“Maybe it’s your fault
Did you ever think it might?
It sure looks like anxiety
Caught in fight or flight
This isn’t an emergency
I’ve no time to spare tonight
For another hypochondriac
Who thinks her Google search is right”
The words echo again
We’ve heard them all before
Generations of us girls
Lost to fable and to lore
Seal wives and fae women
Changelings left by the door
You wouldn’t hear our screaming
So now you’ll hear our roar
Read 15 tweets
Today @GeneticAll_UK is launching a new report, ‘Good Diagnosis:Improving the experiences of #diagnosis for people living with rare conditions’.

Read the full report geneticalliance.org.uk/gauk-news/news…
#GeneticAllianceUK
#RareDiseaseDay2022
#RareDiseaseDay
Over a third of people living with a #RareCondition
will wait for more than five years to obtain a
definitive #diagnosis, often receiving a number of
#misdiagnoses along the way

#RareDiseaseDay2022
#RareDiseaseDay
The ‘diagnostic odyssey’ is a term used to describe the time taken between a patient first developing #symptoms and receiving a correct #MedicalDiagnosis. This can be a long and eventful journey.

#RareDiseaseDay2022
#RareDiseaseDay
Read 53 tweets
This Summer I wrote a paper on ADHD comorbid w/AUD. This article mentions that #addiction is more common in those with ADHD. BUT it’s only more common if the ADHD goes un-dx, causing greater chances of “risky behaviors” early-on, leading to addictions.

thespicytherapist.com/how-to-stop-wa…
I felt it important to discuss this so we don’t reinforce stereotypes. While addiction can be common in those with #ADHD - it is, sadly, much more common when DX/treatment wasn’t given early-on or if never a dx/treatment was never given. #adhdtwitter #ADHDers
The reasoning for this is that in adolescence those with un-dx ADHD are have an increased chance of engaging in “risky behaviors” earlier- leading to substance abuse and subsequently addiction.

#ADHD #adhdtwitter #ADHDers
Read 4 tweets

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