Discover and read the best of Twitter Threads about #worldibdday

Most recents (2)

1/ Today is World #IBD Day. Here is my #CrohnsDisease story: buff.ly/2TkWenc When considering my post for today I've been reflecting on why awareness days are important and with that I began to think about the history of IBD: how patients were treated in the past, what
2/ treatment options were available... So much has changed and it is all because of people sharing their stories, the hard work and dedication of our GIs and other clinicians, and the money and support that came from advocacy which led to where we are today. It wasn't that
3/ long ago that patients were being blamed for their IBD. It was thought that they had a "mother fixation," marital problems, and so on. A disease of the psyche. Patients were taken away from their families and isolated and went through unimaginable things. Lobotomies were
Read 16 tweets
Aujourd’hui, journée mondiale des MICI, petit thread sur ma vie avec une maladie de Crohn. @afaCrohnRCH #TousEnViolet
1/ J’ai appris que j’avais crohn il y a cinq ans. J’avais 20 ans. J’ai eu mal au ventre pendant des mois avant d’oser aller en parler à un médecin. Et oui crohn ce n’est pas chic et aller parler de ses selles à 20 ans ce n’est pas facile.
2/ J’ai d’abord tenté de me voiler la face. Je me répétais que ça allait passer, que c’était rien. Au fond, j’avais peur. Ma mère a été malade 20 ans et diagnostiquée pour un crohn qui n’en était pas un. Je ne voulais pas. Je n’avais jamais pensé pouvoir avoir cette maladie.
Read 17 tweets

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