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Many people asking recently "why is an #hEDS diagnosis important if there's nothing I can do about it?" There's a simple answer and a complex one. Simply: because that's not TRUE - there's LOADS we can do about it. A brief 🧵
1. Knowledge is power. Knowing the answer that connects the dots for your symptoms helps put YOU in control of your health. Its also extremely validating to have answers.
2. #hEDS diagnosis can point docs connect seemingly unrelated symptoms. Struggling with your asthma symptoms? Maybe you need an #MCAS eval. Always feel like your heart is racing? Maybe check for #POTS.
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