#DigitalHealth Futurist πŸ‘¨β€πŸ’» Profile picture
#DigitalHealth Futurist. Recovered from over a year of living with #LongCovid. Health Data, Human Focus, Global Perspective. Tweets my own.

Sep 20, 2020, 9 tweets

Day 165 of #longcovid and it's another day of feeling a tiny bit better than the previous day. Still feel quite a long way from "normal" in terms of what I feel I'm able to do but grateful for not feeling worse than yesterday πŸ™πŸ½1/n

My natural wake up time is between 4-5am, so despite crappy sleep (according to my data), I actually feel ok-ish, still takes me several hours before I fall asleep at night 2/n

Good to see I was able to keep my HR below 104bpm yesterday (an experiment to see if that approach avoids future relapses) 3/n

I limited my activities at home to cooking, cleaning, light housework, plus I had a 5 min walk outdoors yesterday. Still, more active than I expected (when I glance at my data) 4/n

So this has all been the data from my Withings Scanwatch (left arm) and it's interesting to compare against the data from my Apple watch (right arm) - I don't know if floors climbed is defined the same as flights climbed but the numbers are close-ish 5/n

I am still living with persistent lower body symptoms, and I am starting to wonder if it's a semi-permanent symptom. I can walk ok, but I cannot lift myself up from a squat and getting on/off toilet, chair etc requires effort as it's not easy 6/n

It's fascinating to see the body and brain improve at different rates. I have more energy in my brain today (in terms of feeling bored and restless) but my body doesn't have the corresponding energy to act upon that restless mental energy 7/n

There is a free webinar from the Royal Society of Medicine on Thursday this week, "Long COVID: Understanding the shadow of the virus" rsm.ac.uk/events/rsm-stu… 8/n

It's just over an hour till sunrise. I'm going to see if I can do another 5 minute walk then. Rather than constantly compare myself to what I could do before I got sick (which would not be good for mental health), I just compare myself to the day before, and keep life simple /end

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