Thread by @purplemamabear

I can’t.
Do they not realize that pulling individuals from #opioid medications also causes suicide ideation and attempts?
#Paincare in the US is awful. Maybe there are pockets where quality care can be accessed but as a caregiver and advocate for many w #hereditarypancreatitis 1

it’s inadequate, stigmatizing and traumatic. I am tired of waiting. I witnessed the traumas my husband and kids went thru and my hope was to raise awareness that others would not have to suffer the same. The #CDC as well as other entities imo has put the horse 🐎 b4 2/

the cart. Why not look at developing options have less risks instead of trying to gaslight those that have found relief and QoL thru LTOT. Quite honestly it’s a ‘cluster’ and not getting better. I understand that there are wide variances of pain and intensities 3/

and I support wholeheartedly research on every front to be better able to support each person ind based on their needs. Yet there are those that have attempted mult treatment and therapies to find LTOT provides the best QoL. I continue to see trauma at the hands of 4/

the medical community for not acknowledging this. I am tired of pontification I want change. I want the harm and suffering to stop 5/