Thread by @epilepsyaction

68% of people with epilepsy have been left ‘unsatisfied’ or ‘very unsatisfied’ with their PIP assessment, according to our latest survey.

The system is chronically flawed and failing people with epilepsy. A drastic overhaul is needed.

epilepsy.org.uk/welfare-campai…

#MakeWelfareFair

In the survey of 700 people who have claimed PIP 82% stated their assessor did not understand epilepsy, and that the PIP claim form and assessment questions do not accurately capture the difficulties of living with a fluctuating and invisible condition.

#MakeWelfareFair

78% of people said they did not believe their medical evidence was taken into account.

“I was told that I have no cognitive or memory problems when the medication I am on cause memory issues and delayed processing and I have had severe seizures for years.”

#MakeWelfareFair

Two-thirds (68%) of respondents said their PIP assessor did not record their answers accurately #MakeWelfareFair

58% thought the PIP application form did not allow them to fully explain their condition and that the intricacies of epilepsy were not taken into account #MakeWelfareFair

We are calling on the @DWP to provide assessors with proper training, to simplify the application process and to reform the system so it captures the reality of living with a fluctuating, often hugely debilitating, condition.

We would be happy to work with the @DWP and assessment providers to ensure that their ‘condition insight reports’ accurately reflect the full impact of epilepsy.

Find out more and how you can help by writing to your MP at epilepsy.org.uk/welfare-campai…

#MakeWelfareFair