Thank you Vicky for sharing your experience of #PIP with us in this thread 👇

"I was born with nocturnal epilepsy and have tried many medications but none have been able to fully control it and my epilepsy is too widespread to have surgery. I had a VNS fitted in March. Sometimes I now have tonic seizures or short clonic seizures instead of tonic-clonic and partial seizures though I do still have some tonic clonic and partial seizures. I also have problems using my right arm following a suspected stroke when I was a baby.

🔴Applying for PIP is an ordeal for many people with epilepsy. Our survey clearly exposes the flaws in the assessment process, which have not improved in eight years.

https://twitter.com/epilepsyaction/status/1465281981479108608

🔴There is a woeful lack of training and assessors are quick to dismiss the severity of the condition. They are not looking at medical evidence or considering how unpredictable epilepsy can be.

68% of people with epilepsy have been left ‘unsatisfied’ or ‘very unsatisfied’ with their PIP assessment, according to our latest survey.

The system is chronically flawed and failing people with epilepsy. A drastic overhaul is needed.

epilepsy.org.uk/welfare-campai…

#MakeWelfareFair In the survey of 700 people who have claimed PIP 82% stated their assessor did not understand epilepsy, and that the PIP claim form and assessment questions do not accurately capture the difficulties of living with a fluctuating and invisible condition.

#MakeWelfareFair