1/x 🧵A friend sent me this asking what is this about? I found out. This is the story of what led to to this most public and most significant direct patient plea to @RobertJenrick I have not seen this EVER happen before. #forgotten500k
2/x It's coming from the 500,000 who are immunocompromised who are at risk from COVID-19. Still unable to work, see friends or hug loved ones. They are #forgotten500k, unheard and calling on us to notice. They have collected donations to ask for help from power. Hence all the ads
3/x They want protection that has been given to 32 other countries, but decision making has been stalled in the UK. They would like prophylactic antibody therapies to prevent them getting unwell with COVID as cases rise.
4/x Patient advocacy & democracy spring into action. Representatives from #forgotten500k are writing to MPs. I have never seen this determination to put NHS patients at the front of the global queue for access to new drugs.
5/x They have pulled savings and resources to get this van in the hope, one might say vain hope, that @libdemdaisy or @RobertJenrick or @theresecoffey might walk outside to see it. They've even put their pictures there too. They did this in the cost of living crisis too.
6/x They've got broad clinical support and strong academic support. Note the points from our @APPG_VGP- "Deeping disquiet and clinical concern". Clinicians from 17 specialities are calling on the UK to align with global pandemic norms.
7/x After all, we have seen the news in the BBC about the risk to covid, which we know will disproprotionately affect the #immunocompromised. If you don't respond to the vaccine then your risk is higher. Many don't have or have low antibodies after 5-6 doses. They are worried.
8/x. So why are they doing this? It is out of desperation because they have been forgotten & going through much suffering. The decision to fix this could be implemented by Christmas as we wanted. The issue is whether @RobertJenrick walks out the door to notice... @EnnalsEthan
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