Thread by @organichemusic

‼️SURVEY UPDATE‼️

How has COVID-19 vaccination affected your #LongCovid symptoms?

With 654 responses to this question so far:
52% no change (or fleeting changes ≤ 1 wk of vaccine)
28% worsened❌
17% improved✅
3% a mix

How long did benefits or relapses last? See next tweet⬇️

Of the 111 who IMPROVED post-vaccination, ~50% improved long-term.

Thus ~8.5% of those vaxxed with #LongCovid enjoyed some degree of LONG-term benefits post-vaccine, while another 8.5% experienced just TEMPORARY benefits (from several weeks up to several months).
2/x

In Long Covid sufferers who IMPROVED with vaccination, the most commonly reported experience was a LONG-term & SLIGHT improvement (29/654=4.4%).

The most RARE experience was significant long-term improvement (8/654 = 1.2%).

What about those who worsened? Read on. ⬇️

3/x

Of the 28% #pwLC who WORSENED post-vax:
77 felt worse temporarily
101 felt worse long-term

The most common experience among this population was a SIGNIFICANT LONG-TERM worsening (54/654=8.3%).

Overall, 101/654 or 15.4% #pwLC reported feeling worse long-term post-vax.

4/x

VACCINE-INDUCED LongCovid (SEPARATE data from above)

71 of 1,193 (6%) reported vax-induced LC.

HALF (35) were females aged 30-50 yrs.

Symptoms were triggered by the FIRST vaccine in 63%.

Of the 20 vaxxed AFTER their vax-induced LC, 13 felt worse, 8 no change, & none better.

☝️☝️Survey updates for vaccine benefits/setbacks in #LongCovid (n=654) or vaccine injury (n=71) @j_b_kennedy @loscharlos @pamelarbishop @Naomi_D_Harvey @fucklongcovid @LaRougeAbeille @D_Bone @ShaneyWright @LongCovidAdvoc @TheExtraFiles @longcovidman @PDreame @long_covid

One last thing:
Consider how another round of COVID may affect your LC. I strongly suspect it would do MORE damage than the vaccine in most cases & with much greater frequency than the vax's reported 28%. How well are you willing/able to protect yourself from reinfection?

In my case, I am taking very strict precautions to avoid infection, so I have opted to skip booster #4. Only curbside pickup for groceries. No visitors, no social events, nothing. When outdoors, I stay away from others & wear a mask if passing another person is unavoidable.

However, if my risk of infection were to ⬆️-- for example, I needed to go to a series of doctor visits where (ironically) the risk of infection is high -- I'd get a booster, probably Novavax. I'm confident that covid has a much higher probability of harming me than the vaccine.