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Freja #LongCovid since 4/01/21 with #PoTS Sharing my jouney with Long Covid and HNPP.

May 16, 2023, 9 tweets

£57,600 of @scotgov funding was used by @covidaidcharity and LGOWIT to create a dangerous #LongCovid Self Management course full of awful recommendations - exercising, positive thinking to heal LC, suggests fatigue & shortness of breath are anxiety, depression or lack of exercise

The course contains at best misleading and at worst factually incorrect and damaging information. Most of the content appears to be reused from another chronic illness management course, it is not specific to Long Covid. Only one section specifically mentions Long Covid.

These are all direct quotes from the course. These may be triggering.

If #pwLC follow this advice it could trigger Postexertional Malaise and worsen their condition. One study found that exercise made Long Covid worse in 74.85% of cases and only improved 0.84% of cases. It also goes against the NICE guidelines.

The course also encourages Toxic Positivity to improve a multi-systemic disease. It also tries to gaslight people that their symptoms are from psychological causes rather than physical damage from Covid.

This course fails in so many areas detailed here. The content appears to be reused from a general chronic illness management course with just one section specifically mentioning #LongCovid.

This course needs taken down and permanently removed from public view or temporarily taken down while it is rewritten with accurate information.

@covidaidcharity and LGOWIT need to be held responsible for their actions. They have been contacted.

Here are my sources to back up why this course is so dangerous, particularly for people new to #LongCovid who do not yet know what to do and have never dealt with an energy limiting condition before.

Please share to raise awareness or this dangerous #LongCovid Course.
@DrGrounds @drclairetaylor @CM_7505 @ZeroCovidScot @mciver1977 @amyismall

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