🧵 Parliament is (finally) back in full swing and it’s good to see a round of questions focused on ME and Long Covid. Big thanks to @BellRibeiroAddy, @DrBenSpencer @SharonHodgsonMP
What have we learned?
1️⃣ There are no current plans from NICE to update the 2021 guideline for managing Long Covid
theyworkforyou.com/wrans/?id=2024…
2️⃣ DHSC is working off 2023 data when 4.41% of healthcare workers and 5.33% of social workers reported Long Covid
“Long+Covid” theyworkforyou.com/wrans/?id=2024…
3️⃣ The gov expects healthcare commissioners to take the 2021 Nice Guideline for ME/CFS “fully into account” and “work towards their implementation over time”
theyworkforyou.com/wrans/?id=2024…
4️⃣ DHSC has made no specific assessment of the adequacy of the safety of NHS care for severe and very severe ME patients (at least they’re honest 😅)
theyworkforyou.com/wrans/?id=2024…
5️⃣ DHSC officials are (still?) in the process of finalising a summary from the consultation for publication.
Plan still slated for Winter 2024/25 (I’d be surprised though if we see it before end of year based on the current pace)
theyworkforyou.com/wrans/?id=2024…
6️⃣ The prevention of future deaths report from #Maeveinquest is being reviewed by DHSC. It is ‘being considered’, they will ‘respond appropriately’ and ‘it is important we learn the lessons’
theyworkforyou.com/wrans/?id=2024…
7️⃣ It was not possible to provide info about recent discussions with NIHR in the usual time period - but this will be answered soon
theyworkforyou.com/wrans/?id=2024…
That’s all for now - until the next round of parliamentary scrutiny 🥳
Spoke too soon! A couple of late entries…
8️⃣ DHSC has no estimate of the number of people out of the NHS workforce due to Long Covid (😱)
theyworkforyou.com/wrans/?id=2024…
9️⃣ DHSC is stalling on further questions about commissioning specialist ME care, developing a national strategy and meeting patient representatives.
All “not possible to answer this question within the usual time period. An answer is being prepared” 🥱
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