Karen Hargrave @karenlhargrave.🦋.social Profile picture
Independent researcher & policy analyst | @karenlhargrave.bsky.social | Research Associate @ODI_Global | Co-founder #ThereForME https://t.co/qzdifn9AUg
Dec 19, 2024 12 tweets 4 min read
🧵 The results from the public consultation on the interim delivery plan were released this morning

I need time to properly read and digest - but a quick thread with some of the things that jumped out on first glance 👇

gov.uk/government/con… First of all, consultation wrapped October 2023. That is a LONG wait but the report is finally out.

Decent responses - over 3k & most from ‘individuals’ (presumably patients/carers). Clear throughout that BPS proponents gave opinion. But hopefully outweighed by patient voice. Image
Oct 17, 2024 11 tweets 5 min read
🧵 Parliament is (finally) back in full swing and it’s good to see a round of questions focused on ME and Long Covid. Big thanks to @BellRibeiroAddy, @DrBenSpencer @SharonHodgsonMP

What have we learned? 1️⃣ There are no current plans from NICE to update the 2021 guideline for managing Long Covid

theyworkforyou.com/wrans/?id=2024…Image
Sep 17, 2024 6 tweets 2 min read
Hello #ThereForME friends and followers! You may already have seen some of the exciting stuff we have going for #WorldPatientSafetyDay today w/@BinitaKane 🙌

A short 🧵..... (1/) We are delighted to have @BinitaKane collaborate with #ThereForME on a letter sent today to @wesstreeting @DHSCgovuk from over 200 healthcare workers.

If you wanted a list of healthcare workers that are #ThereForME - this is it! Full text 👇

(2/)

bit.ly/3ZmxwG5