If you are an employer, please pay attention to this. Autistic people do not always interpret your implied meanings accurately, but you all don't interpret ours accurately either.
Explaining her anxiety spikes was to demonstrate how hard she works-- to show dedication. This is how other autistic people would interpret that statement of fact. Neurotypical people would be more prone to see it as a complaint and an accusation.
It would likely have read to many employers as, "Please stop asking me to drop what I am doing. Your ableism is causing me distress." We often get pegged as being negative when we are actually saying something that is to demonstrate devotion. We value long-suffering as honorable.
Our love languages are doing work and acts of service in self-sacrifice and information-sharing. This comment to an employer was a demonstration of professional and interpersonal loyalty, not a complaint or accusation.
We have different internal social codes, and the only way you can learn to accurately interpret us is to learn from autistics and ask autistics. We use the same words but speak a different language. We also need you to help us interpret what other non-autistics say.
Also, our humble statements of fact about our work are often misinterpreted as bragging. It's not meant to be bragging, and we are not seeking praise. We are trying to let you know that we had you in mind when we performed an act of service.
You verbalize your emotions and try to validate ours by addressing our emotional experience ("You must have been so sad/afraid/excited"). You compliment our innate traits ("You are so smart/talented/kind/beautiful.")
Depending on context, this can make us uncomfortable or miss the mark. We are often hoping to hear, "This is really helpful," "I learned so much from reading/hearing that," "This will be so useful," or "You tried hard for me."
Not all behavior is communication, & everyone from autistic advocates to professionals to researchers who neglects to learn about & understand the lived experiences of nonspeakers with severe apraxia & motor disinhibition are causing harm, no matter how "trauma-informed" you are.
Imagine people thinking the pinnacle of your capacity to understand is reflected by your toddler-like noises. Imagine automatically saying "yes" when you mean "no." Imagine people thinking you actually want to engage in compulsive behaviors you don't want to do.
Imagine desperately wanting to express that your body doesn't work with your mind, but you point at "happy" on your PECS board and people clap and cheer for you. Imagine having no good options to say the loudest things you need to say on your electronic picture-based AAC.
Here’s what was said in Irish parliament referencing our org and its founder: “There are advocates who are vocally against systemic ABA in the US, such as Terra Vance, who runs NeuroClastic. She has a boycott-ABA approach in the US,[…]” Cont.
“[…] but she also recognises that outside the US there is a very different culture. She has stated that behaviour analysts seem to be the only people being held to account, but also that they are the only people who are listening.” (Cont)
This is not entirely untrue. We have said that the circumstances, and thus our advocacy surrounding ABA, vary different depending on the country & region. Mostly, we acknowledge the United States, with 50 states all having sovereign jurisdiction, have laws in place regarding ABA.
NeuroClastic is working on a response to the discussions held by the Houses of the Oireachtas Committee on Disability Matters on Thursday, May 4th, in Ireland. This is currently Terra Vance, org founder. I want to share some thoughts that won’t work their way into our reply.
Our org is probably the highest profile autistic-led org in the world. Our articles on ABA are probably the most heavily cited autistic perspectives. We have over 150k followers across social media, the vast majority being autistic.
While no one can represent all autistic people, we are generally globally respected as critically important representation of autistic perspectives— and our org is led by unpaid disabled volunteers. We cannot pay one person a salary. Why does this matter?
Neuroclastic is preparing to respond to the discussions held by the Houses of the Oireachtas Committee on Disability Matters on Thursday, May 4th, 2023, in Ireland.
The topic of discussion was the consideration of rights-based behavior analysis and support (cont).
This meeting was called after behavioral analysts challenged the findings of the Joint Committee on Disability Matters release in Feb 2023 that concluded that & PBS do not align with United Nations Convention on the Rights of Persons with Disabilities (UNCRPD) and human rights.
During the discussion on May 4th, an attendee referenced our organization and CEO, Terra Vance, in a way that did not accurately reflect our org’s or CEO’s position on Applied Behavior Analysis (ABA). The meeting was broadcast (link below).
Okay, let’s talk about how a Nonspeaking Autistic writer, Gregory Tino, just published a children’s book called The Autistic Boy in The Unruly Body, and how it’s the #1 new release on Amazon’s “Autism and Asperger’s” category. But first, a #NeuroInclusive story about #Apraxia
We made this #NeuroInclusive story with Gregory’s permission, using illustrations from his book. 86% of autistic people have clinically significant apraxia/dyspraxia. That’s a motor planning— not motor ability— disability.
People with mild apraxia may have minor speech or bodily symptoms, and unlike autism, apraxia can be mild or severe. #Apraxia is often called #dyspraxia interchangeably or may be specified as “apraxia of speech.”
For the victims of institutional violence, and especially if you’re autistic and do not understand the source of the hatred that gets directed at you or how people can even imagine such cruelty, the physical abuse is often not the worst.(cont) #StopTheShock#JRCSueMeToo
It is the terror—the abject torture— of not knowing when. You have to be hyper aware of everyone’s moods at all times and try to adjust your behavior to their unpredictable ire that seems to come from somewhere you’ve never accessed. We talk a lot about the electroshocks at JRC.
But the spaces between the shocks, 24 hours a day strapped to a torture device and being around people tasked with using it to control you— that’s the unrelenting anxiety that will cause you to lose yourself and come unglued. It’s neverending.