Listening to @SecAzar talk about his frustrations getting his own personal health data - and his commitment to patient access to their healthcare data. ’This has to change.’ [bravo] @ONC_HealthIT#ONC2020@HHSGov#DigitalHealth#BigData
@SecAzar@ONC_HealthIT@HHSGov ‘People should be able to access their health records at no cost.’ says @SecAzar … ‘patients need to control access over their records’ ‘we will consider the input of ALL stakeholders’ ‘will pursue the goal of patient empowerment’ 'patients have access to their information'
@SecAzar@ONC_HealthIT@HHSGov ‘defending the status quo is an unpopular place to be’ says @SecAzar in reference to the frustrations patients experience getting access to data. ‘scare tactics will not stop reforms’ ‘putting patients in control of health records at the center of healthcare'
@SecAzar@ONC_HealthIT@HHSGov Hearing @SecAzar making clear patients can get greater access to data while maintaining control & having privacy protected… ‘you as the patient are at the center and in control…’ ‘we have the technology to make it happen’ [remarkable endorsement of a patient-centered system]
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What we do now is write a paper...& then preprint @medrxivpreprint ...then we take reviews from the journal & the world & work to make the research better. So, Internal tremors & vibrations in long COVID: a cross-sectional study is open for public comment. https://t.co/xh7dXqPcSGmedrxiv.org/content/10.110…
@medrxivpreprint Our objective: 'We compared demographics, socioeconomic characteristics, pre-pandemic comorbidities, & new-onset conditions between people with internal tremors and vibrations as part of their #LongCovid symptoms & people with long COVID but without these symptoms.' #LISTENstudy
@medrxivpreprint Our finding: Among people with long COVID, those with internal tremors and vibrations have more associated symptoms and worse health status, suggesting it may be associated with a severe phenotype of the condition. @YaleCII @YaleMed @YaleCardiology
We have been doing a series of studies, led by @jeb1426, on sex differences in symptom complexity & phenotypes in acute myocardial infarction (AMI) and their impact on diagnosis & treatment. Some imp findings. #Cardiology#MedTwitter@YaleMed@YaleCardiology@yuan_lu1
One of most important articles I’ve done… showing the noise in clinic BP measurement is large & makes it impossible to track Rx effects; almost useless in evaluating change from 2 clinic visits. Let me explain… ahajournals.org/doi/abs/10.116…@YaleMed@YaleCardiology@CircOutcomes
@yuan_lu1@CircOutcomes@SpatzErica@YaleMed@YaleCardiology@AHAScience@amjmed We wrote that persistent hypertension was a condition of repetitive measures of above-goal elevated blood pressure over a period of time (eg, 6 mos), and drug resistance was just one of many causes. And many causes were related to missed opportunities in the care pathways.
Sleep as medicine... On behalf of hospitalized patients, what is we simply stopped ordering routine lab draws before 7am. What is we wrote an order, do not disturb before 7am except for an urgent need. Or an order for 7 hrs of peace and quiet. @FutureDocsnam12.safelinks.protection.outlook.com/?url=https%3A%…
@FutureDocs I strongly believe that rest and sleep are essential to recovery from acute illness...and yet everything we do in the hospital seems to ignore the role of sleep in treatment. We need to put people in a position to help their bodies heal and recovery... not make it more difficult.
@FutureDocs In our study we found it was normal operating procedures to draw bloods from 4-6am on hospitalized patients...the unintended effect, in my view, is to slow recovery and add stress... and impede healing. Shouldn't the hospital be where people can be treated, healed and recover?
@JAMA_current@jeremyfaust@YaleMed@harvardmed@YaleCardiology@EMRES_MGHBWH We believe excess mortality is the best metric of the burden of the pandemic… how many excess deaths compared with a pre-pandemic steady state period. And so not about labeling deaths… but a broader view of mortality.