In face of the violent, unjustified attack against Norwegian ME patients in today's edition of Dagbladet, we would like to extend our full support to them & Norges ME-Forening.
No patient should ever be blamed for requiring safe treatments based on sound science.
@ME_Rogaland
No patient should ever be blamed for requiring safe treatments based on sound science.
@ME_Rogaland
Dagbladet ran a 12-page article titled "The ME war - noone has ever seen this before" which unilaterally promoted the views of psychologists that ME is all in the head, and that GET/CBT/LP are appropriate treatments for ME.
Both views have been refuted time and time again.
Both views have been refuted time and time again.
Studies on psychotherapies for ME have been plagued with methodological errors & patient reports of harm.
Meanwhile, biomedical research on ME consistently shows neurological, immunologic, metabolic & physiological impairments in patients affected by this debilitating disease.
Meanwhile, biomedical research on ME consistently shows neurological, immunologic, metabolic & physiological impairments in patients affected by this debilitating disease.
Dagbladet only expressed the views of psychologists/psychiatrists and did not interview any active biomedical researcher or any ME patient who has been harmed by GET or LP.
This unacceptable bias further stigmatizes Norwegian ME patients, who have been attacked in FB comments.
This unacceptable bias further stigmatizes Norwegian ME patients, who have been attacked in FB comments.
Norwegian ME patients, some severely ill, only demand treatments based on scientifically rigorous, safe and ethical biomedical studies.
They are continuously denied this right as yet more public funding goes into studies on psychotherapies despite serious conflicts of interest.
They are continuously denied this right as yet more public funding goes into studies on psychotherapies despite serious conflicts of interest.
We hope that as biomedical research on ME progresses, a diagnostic biomarker will be found and will lead Norwegian health authorities to admitting their mistakes, apologizing to ME patients and funding studies for medical treatments for ME.
Fortsett å heve stemmene dine!
Fortsett å heve stemmene dine!
.@Nina_Steinkopf has published a blog post about Dagbladet's errors in the article and their misleading framing of her statements.
Link: melivet.com/2020/05/30/dag…
Translation: translate.google.com/translate?sl=n…
Link: melivet.com/2020/05/30/dag…
Translation: translate.google.com/translate?sl=n…
.@davidtuller1 has published the letters that he & Professor Jonathan Edwards have sent to Dagbladet in response to their article.
Pr Edwards addresses the issues with the proposed study on LP. David Tuller recalls the serious flaws in the 2017 LP study.
virology.ws/2020/05/30/tri…
Pr Edwards addresses the issues with the proposed study on LP. David Tuller recalls the serious flaws in the 2017 LP study.
virology.ws/2020/05/30/tri…
