Just so people know, if you're a trans person working any sort of professional job and you're interested in advocating to your company about healthcare, we're happy to chat privately about what to ask for and how.
We were heavily involved in efforts around that during our time at Google, and there's a lot of transferable knowledge that applies to any company.
Belatedly, we realized that because we DO have that highly detailed knowledge on this topic, we should directly talk about Discord's thing.
We have not spoken to people who have inside knowledge of Discord's health benefits; we are going on the basis of already-public information.
(If you are one of those people, and you're based in the US, health benefits are squarely in the middle of the definition of "working conditions", and you have some very strong rights protecting your ability to talk about them.)
So the benefit as we understand it is that Discord offers a reimbursement of up to $10,000 USD for medical expenses which are paid out of pocket.
There is a lot of important subtlety to that. For example, we have no information as to who decides what counts as a medical expense. If it's the same insurance company that denied payment, that wouldn't be great.
Overall, we think that reimbursements like that are an important measure *as one piece of an overall package*. When the system fails people - as it often does - it's good to have something that at least makes you whole, even if you had to put out the money originally.
That $10k reimbursement should not be misconstrued as a surgery benefit. There's a wide variety in gender-related surgeries, and in the surgeons who perform them, but generally the cost will be somewhere between $5k and $40k.
That's actually quite small. It is SUBSTANTIALLY less than a typical pregnancy. The only reason that insurance companies are reluctant to cover gender-related surgeries is that they can get away with not doing so, for now.
Again without knowing any of the details, it's hard to speculate, but one gender-related expense that the $10k reimbursement might be helpful for is hair removal. Hair removal, depending on its scope, can have costs around that amount.
Hair removal is sometimes done as a preparation for surgery, and sometimes for its own sake. Insurance companies often have blanket policies against covering it, because they call it "cosmetic".
It should be clear to everyone that when hair removal is done to address gender dysphoria, that it is a medically necessary procedure, even if it might be cosmetic in other situations. Plus sometimes (not always) it's necessary prep for medically necessary surgeries.
So that's the kind of scenario which is likely to be the motivating example behind the reimbursement policy. It does not sound like a comprehensive plan, by any stretch, bu by itself it's not a bad policy, it just doesn't go far enough.

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More from @ireneista

15 Oct
Just to keep our tweets organized, this will be the thread topper for our live-tweet of session 2 of #pepr20, when the break is over.
Okay! We're back from break. The talk title went by very quickly, ... now there's a pause, hopefully the speaker will introduce themselves again. #pepr20
According to the schedule, this one should be "Building and Deploying a Privacy Preserving Data Analysis Platform", by Frederick Jansen. #pepr20
Read 9 tweets
15 Oct
Okay! We will be live-tweeting #PEPR20, the USENIX conference on Privacy Engineering Practice and Respect. Feel free to mute that hashtag if you don't want to drown in tweets.
@LeaKissner is now keynoting! #pepr20
Lea says the conference was gonna be in California back in May, but then 2020 happened so here we all are in October dialing in from home. #pepr20
Read 143 tweets
2 Sep
The thing you have to understand about America is that anyone who grew up there, grew up being fed propaganda that most of us took at face value. That sounds like an extreme position, but it's the literal truth.
The US mythologizes its own impact on the world, focusing only on the positives and glossing over the negatives.
The US mythologizes its own *place* in the world, declaring itself a leader in all sorts of things - public health; infrastructure; democracy - where it is nothing of the sort, and has not been for a long, long time.
Read 9 tweets
18 Jul
Here's a thought we've shared privately, but it's taken time for us to get a formulation of it that doesn't ramble too much.

When people talk about working for change "within the system" vs. "outside the system", what system do they mean?

Answer: It depends! A thread.
People without a science background, or even people with that background who don't also pay attention to the humanities, may not realize that the word "system", in its modern sense, had to be invented. It wasn't a single moment, either, the idea was refined over many years.
Wikipedia has a page that's titled just "System", because it's a more interesting concept than you might realize. en.wikipedia.org/wiki/System#Hi…
Read 22 tweets
19 Mar
@maggiepint @wbucksoft @cgranade hi, yes, very much so. the dystopian potential is immense. if you do this, make sure it has strong checks and balances built in at both the technical and legal levels, from the start. you'll never manage to add them later.
@maggiepint @wbucksoft @cgranade there is a real public benefit to using cell phone location data for public health analysis, but speaking as a privacy expert: imagine the worst possible way it could be used, and you will never be disappointed.
@maggiepint @wbucksoft @cgranade for something like this, protections not only need to be designed into the system, there needs to be public discussion of the protections and their merits, and political will behind keeping them in place.
Read 6 tweets
8 Nov 19
Back when we wrote this, we didn't tell anyone that we were thinking about how much longer we could stand to stay at Google, in a role that had us thinking about trolley problems for a living.
Not literal trolley problems; self-driving cars should simply do all they can to avoid obstacles. That part *does* have a boring engineering answer. But ethical dilemmas made unexpectedly practical.
It really sucked, but we felt obligated to keep doing it as long as we were making a difference. We ultimately lasted another fourteen months.
Read 12 tweets

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