I think it's important that non-speaking methods of communication are not seen as a 'last resort' after all attempts at speech are exhausted. We should be trying to find ways for people to communicate, not fighting for speech at all costs.
That's not saying don't try speech therapy, but also try different methods of AAC at the same time. See which works. I can't imagine the pressure that intense speech therapy could put on a child, especially when AAC is available and could be world changing for them.
If there are methods of communication that a child may connect with, gel with, be able to use happily without stress, then I am unsure whether it's ethical, kind or moral to continue with intensive speech therapy programmes under the notion that spoken communication is superior.
Open all doors of potential when it comes to communication. And find what works for your kid - not what fits your (and the medical profession's) ideal.

Letting your child use the AAC that works for them is not giving up, and it's definitely NOT letting them be lazy.
It's the same mentality that pressures parents not to let their D/deaf kids learn sign because then they'll 'settle' with sign and not try hard enough to be verbal and lip read. It's oralism, pure and simple - it creates a communication hierarchy that deprives people of language.
Medical professionals - stop telling parents that speech must be chased at all costs, stop indoctrinating parents against doing what's best for theit kids.

Parents - please tap into your kids needs and give them a choice of communication options beyond speech.

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with Erin Ekins (she/her)

Erin Ekins (she/her) Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @QueerlyAutistic

23 Nov
The drive-in COVID test centres are totally inaccessible for disabled people, and NO alternatives are offered for people who need more support to do the test. With one in six COVID deaths being of disabled people, not accommodating us to get tested is a travesty.
My friend had to take her niece (4) to get them both tested today. She called ahead and was told there would be support if they couldn't do it. There wasn't. My friend is hard of hearing, so someone talking at her through a closed car window whilst wearing a mask? Not gonna work.
When I had my test a few months back, it virtually ended in me having a meltdown in the car because I didn't understand what I was supposed to do. And I had my family there to support me. The staff were not accommodating and gave me awful looks as I broke down in the car.
Read 5 tweets
22 Nov
Imagine if people with lots of influence and money funded people from marginalised groups to make films about their own marginalised experience, rather than funding their own vanity projects and then getting upset when those marginalised people don't hail them as a saviour.
All I'm saying is that it would save a lot of stress and heartache in all directions.
We need less 'Music', and more wealthy, influential people doing the kind of work that Brad Pitt is doing with his production company:

"Pitt leverages his star power, access and reputation to get you the ball, and then he gets the hell out of the way."

theundefeated.com/features/is-br…
Read 5 tweets
22 Nov
People can care about and work on more than one thing at once, so if they're responding to something that's currently happening and trending, that doesn't mean they aren't also working on the very things you are criticising them for not talking about at this exact second.
Talking about things like media representation ARE important. Talking about things that are trending is important to ensure the narrative doesn't get overtaken by non-autistics. All these things matter, and also tie into other bigger issues.
There's such a pressure on people who talk about certain topics, or advocate on certain things, to ONLY talk about the things that specific people want them to talk about (which is also impossible because if you don't talk about the trending thing, others criticise you for not).
Read 4 tweets
22 Nov
Last week, they basically hung a massive sign around Callum's neck that said 'this storyline has never been about me choosing between Ben and the police, so please stop acting like that's what it is'.

He doesn't care about Ben doing crime, he cares about Ben being safe #Ballum
Callum has never once been torn between the two, never once shown a moral dilemma between 'love or duty', and never once demonstrated that his loyalty was to anyone other than Ben.

Every time he's done what DIDH has told him to do, it's been done to protect Ben from his wrath.
He's never once wavered from that. It wasn't even a question that Callum would tip Ben off about the police knowing, that he would refuse to grass to DIDH on what he knew, because it's never been about 'damn, my duty as a cop or my love for my boyfriend'.
Read 5 tweets
21 Nov
The Sia stuff has led to having people in my mentions over the last twenty four hours telling me it would be kinder on myself, an autistic person, to not be alive.

Sia isn't answerable for every shitty fan of hers, but her power and reach comes with responsibility.
I've been bombarded with ableist slurs and functioning labels. I've been mocked for reacting in such an 'autistic' way, that of course I can't understand nuance enough to 'get' why Sia is right, whilst also being told I can't comment on this because I'm NOT autistic enough.
There will always be shitty people, but people who have power and reach and influence, like Sia, have to mitigate those responses by reacting in a non-shitty way. Sia's responses have all but confirmed for her fans that they CAN talk to us like this, that it's justified.
Read 9 tweets
28 Oct
I feel like it's important that we recognise TERFs as feminists, same with White Feminists, so that we as cis and white feminists can actively resist the ideology and be hypervigilant about questioning our own actions and motives to make sure we don't slip into that territory.
We need to be forever questioning and challenging and being critical of ourselves to make sure our feminism doesn't go that way, exploring how it can be easily skewed into something harmful. Disavowing all bad feminist ideologies as 'other' just discourages accountability.
Just like abusive, racist, ableist transphobic leftists are still leftists - it's about being critical of leftist and feminist spaces rather than washing our hands of it by proclaiming them as 'not really affiliated with us'. They are. And we need to deal with that.
Read 4 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal Become our Patreon

Thank you for your support!

Follow Us on Twitter!