Today's hearing concerned a Trust's application for approval of an order for a 63 year old man with learning disabilities to be given a trans-urethral resection of the prostate (TURP) - using chemical or physical restraint if necessary. nhs.uk/conditions/tra…
He's terrified of hospitals because "that's where my Dad died". He currently has a catheter in place but that needs changing every 3 months with all the difficulties occasioned by a hospital visit. A TURP would fix the urinary problems once and for all.
Mr Justice Hayden is superb today. A clear + unwavering focus on P. "I'm eager to ensure the TERP is undertaken on the basis of clinical need, rather than due to the challenges of getting P to hospital. How do I satisfy myself of that?"
Turns out the previous hospital visit (to get the catheter inserted, approved by Holman J) went smoothly. He said he liked the hospital. He got on well with staff + enjoyed the food. He's not pulled the catheter out. He likes catheter because it solved problem of incontinence.
Judge asks about risks of TURP. They include 10% risk of erectile dysfunction and 70% risk of retrograde ejaculation.
Judge: "How do I know what P's views about these issues might be?"
The treating consultant urologist says he hasn't asked him.
Judge is "troubled by that".
Judge is "very keen, however sensitive it is, that P should are afforded the same opportunities to discuss the risks to his sexual life that anyone else would have".
Matron for Learning Disabilities, who's known P for many years is called as witness.
Matron provides vivid account of P as a person - a shy man, quiet, likes predictability + routine. A really nice chap - friendly and affable. Gets on best with other men - used to enjoy going to pub with his dad and watching football on TV. "A man's man".
Judge asks Matron about P's sex life. "He's never been involved in a sexual relationship to my knowledge"
Judge: "What about masturbation"
Matron: "He may engage in that, but if he does it's very private. Not to the knowledge of staff. He wouldn't discuss it with anyone".
Matron says talking about hospital, surgery or sex with P is impossible. He leaves and goes to his bedroom and locks the door.
Attempts at desensitisation programme to reduce his fear of the hospital are underway but will take months not weeks.
Surgery is planned for 12 Feb.
So, the question for the judge is what happens on 12 Feb?
Does he approve the order to transfer P from his community placement to hospital (under sedation/restraint if req) + give GA so that TURP can be carried out (with side effects as above)?
OR.....
... or should a revised order be approved in which catheterisation in the community is attempted (with fall-back of subsequent hospital admission if necessary)?
Hayden J emphasises importance of hearing from Matron who adds "colour, character, history, dimension to P rather than just presenting him as a medical problem to be resolved".
P has a "brilliant relationship" with his sister who is not in court. Why not? asks judge.
Turns out family may not have been told this was a remote hearing - that they wouldn't have had to travel 100s of miles to London - "they could just have switched on the laptop". Remote hearings offer more opportunities for family attendance + could have been valuable today.
Order not yet finalised so I don't know what the outcome was. Will post when I do!
Thank you to Parishil Patel QC of @39EssexChambers (for Trust) and Nageena Khalique QC (for P via OS) of @serjeantsinn for helpful position statements.
Thank you to @parishil100 who confirmed the court decision was "Try recatherisation in community (probably at his home) with fall back of bringing him into hospital if that is unsuccessful. The TURP will only be needed in the event that regular catheter change is problematic."
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Today's hearing was about RS who is 30. Four months ago he was diagnosed with testicular cancer. His left testes was removed, but the cancer has spread. Without treatment he'll die within a year. With usual t'ment, a 95% chance of cure. Trust referred RS to palliative care only.
His mother advocated for him. Best interests meeting was convened. Agreed usual treatment ("BEP" - Bleomycin, Etoposide, Platinum (Cisplatin) chemotherapy) is not suitable for RS. He'd need to be under GA for 70+ hrs due to inability to tolerate clinical intervention.
RS has Fragile X syndrome, atypical severe autism, learning disability + limited communication. But described by his consultant oncologist as "a fit lad with no physical difficulties".
Does being watched change how justice is done? Lawyers in the Court of Protection say it does. Here are the top 5 ways.
Are there more? Comments welcome!
[1] Cases are opened properly with case summaries highlighting history of case + key issues + introduction to the parties.
[2] Role of observers is now routinely raised with P + P's family Responses include "acute distress", "mild anxiety", "neutrality", "active desire for observers + journalists to publicise injustice". Solicitors may need to become more skilled at these convos. + explaining TO.
[3] Taking more time to expressly set out legal basis underpinning hearing (human rights + MCA). Lawyers' views vary from "as the principles are pushed to the forefront of everybody's mind, they are more rigorously and consistently applied" to concern about extra time taken.
I've spent most of today in court watching an urgent application before Mrs Justice Judd concerning a feeding tube for a woman (P) in her 70s with Lewy Body dementia. She's in hospital following admission in November last year with biliary sepsis + delirium.
She's had a rough time in hospital. Pneumonia, surgery for gallstones + Covid for which she needed oxygen. All this combined to mean she can't swallow + nasogastric tube is now dislodged. Trust don't think replacement replacing it is in her best interests.
Family disagree. Describe P's good quality of life - loved, cared for, supported, communicating with family + doing Times crossword up until a few weeks before hospital admission. Family says this is not "severe" dementia + treatment should not be withdrawn
It's impossible not to feel both humbled + impressed by the (so far) 3 day court hearing I've been watching before Mr Justice Hayden in the Court of Protection. At the centre of the case is a young man whose dignity, integrity + kindness shine through. #NotSecretCourt
The overriding priority in court is not to violate his autonomy - coupled with a concern from everyone to enable + support him to make a choice to stay alive. He has a past full of suffering and a future full of promise.
His parents are extraordinary people who provide love, kindness, safety. They also respect his values and his autonomy. They describe him as thoughtful + considerate; he puts others before himself; he is honest and very clear on what's right + wrong.
Patient tips to help doctors to talk about death and dying. Try asking, "Can we talk about palliative care please - in case the treatment doesn't work" - and don't be fobbed off by attempts at reassurance or "we'll cross that bridge when we come to it". Start the conversation!
Another patient tip to help doctors talk about death: Try “I’m feeling that the benefits of continuing treatment are outweighed by the disadvantages. Can we talk about how I’d be cared for if I stopped dialysis?”
Patient tip: Doctors can be anxious about the D word. Instead of "I'm ready to die" or "I'd rather be dead", try: "Can you help me maximise my QUALITY (rather than quantity) of life. I'd like to enjoy the time I have left other than trying to extend my life as long as possible."