Today is the most important day of my year, #WorldEncephalitisDay 2021. #Red4WED
Encephalitis is the rare brain disease I had age 20, which was misdiagnosed as being a mental breakdown, left to worsen for 3 months in a psychiatric ward and ultimately led to me becoming (1/9) Lucy is stood in front of her dining table wearing a red satLucy laid in her psychiatric ward bed holding her stuffed toEncephalitis is inflammation of the brain – a devastating
permanently disabled, both visibly and invisibly.

It may be hard to imagine if you are a newer follower that there was a time just a few years ago that I couldn’t walk, talk, read or write – and by just looking at my pictures on Instagram, you’d probably have no idea that(2/9)
I am living with an acquired brain injury which has completely altered the direction and path of my life. I choose to speak about Encephalitis wherever I can, because I know that despite the fact that there are hundreds of thousands of cases of the disease worldwide per year(3/9)
So many people are still misdiagnosed and around 78% of people would not be able to tell you what Encephalitis is if asked. With death rates in those who suffer from Encephalitis being high, I feel I owe it to those who have lost their lives to use the second chance at life (4/9)
I have been given to spread awareness at every opportunity that I get, to use my platform to do good for the families affected, the survivors and those who work tirelessly to research the disease. On this day, as with every day, I send love to the family members and friends (5/9)
who have lost loved ones to Encephalitis. I send a message of hope and solidarity to my fellow survivors who may feel like they have lost themselves, I promise you, I have been where you are, I saw the darkest years of my life after the illness took hold of me – but you are (6/9)
so loved, and better days are always going to come. I send support to @the_encephalitis_society, for the work that they do day in day out - without your existence I am sure that I would not be where I am today. (7/9
If I or one of my family members had known what Encephalitis was back in 2016, I am sure that I would have been saved from the most traumatic time of my life, and in knowing that anyone can be affected by Encephalitis at any time – this could be someone you love tomorrow. (8/9)
Please, you owe it to yourselves to become aware. @encephalitis #Red4WED (9/9)

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More from @ludawinthesky

21 Feb
lol someone just replied to the pic of my burn scar on my bum with this and I oopidoopidooooo. Why do some men? Why your under iS ugly but your top is so amazing? Please ba
Hey by the way. Scars aren’t ugly at all. They just aren’t. And also, if you think my scar is ugly then I am so sorry for having a brain disease and a big seizure and burning my bum on a radiator pipe I WAS CATATONIC SORRY silly ME
I’m so bored of all the nasty comments about my disability and body etc online atm. I’m replying to everything from now on with sorry for having a brain disease SILLY ME LOL
Read 4 tweets

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