Tomorrow is #NationalSiblingsDay in Canada. As difficult as things are today, I want to make sure we pause to acknowledge and celebrate siblings tomorrow, with and without developmental disabilities. 1/
Our UK colleagues @Sibs_uk have just released a report on sibs of kids with disabilities and the impact lockdown has had on them. You can read their report here and see the news coverage on @BBCNewsround
here bbc.co.uk/newsround/5666… 2/
“Sibs should not be the forgotten children. We call on government to make sure that siblings of disabled children are recognized as children in need of recovery support, as part of a whole family approach” said @Sibs_uk Chief executive @clkgibson 3/
I know this will apply here in Canada as well. This weekend, we need to pay attention these sibs, & our efforts to support kids with disabilities must include their brothers & sisters too. We needed to be doing this before the pandemic began, and we certainly need to now. 4/
We gave a big shout out to the sibs who were quickly responding, adjusting, pivoting to the lockdown, scrambling to put some supports in place, and to share information as quickly as possible. 7/
And we pivoted our own research so we could better document and understand the sibling experience during COVID-19. 8/
We share an update to our fall report on Cdn Siblings tomorrow as part of #NationalSiblingsDay . And I will spend my day using this platform to recognize the courage, creativity, and commitment of the many brothers and sisters I have worked with & learned from this past year 9/
Getting ready? Why not listen to our podcast where hosts Daniel and Victor, two brothers with disabilities interview two sisters from Azrieli, who talk about their experience growing up with sisters with disabilities. 10/
If you know someone with a developmental disability, you probably know a brother or sister too. They might not know it is #NationalSiblingDay tomorrow, or that we have a national organization @SibCollab created by sibs for sibs where they can find peer support & info /fin
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I see you. Being careful this year about which job you can take so that while living in your apartment in isolation you know that you can still pitch in at your parents’ home, while making sure no COVID enters the doorway. 2/16
I see you. Translating and advocating in the hospital, managing what happens to your sister and insisting she not be left alone, but also tending to your parent, both hospitalized because of COVID. 3/16
Our first @camhnews mindfulness study showed the importance of bringing families in similar situations together, recognizing the realities of caregiving while learning mindfulness - group was acceptable to families and led to reduced distress 2/11 link.springer.com/article/10.100…
We then found that parents who participated in this mindfulness course reported greater reductions in distress, which remained 3 months after, compared to parents who attended a 6-week support and information program 3/11 link.springer.com/article/10.100…
No data yet in Canada, but we saw major reports from UK and US this week on deaths from COVID during first wave for ppl w developmental disabilities. At a first glance, both reports garnered media attention but what do we do after we see the headlines?
If we have developmental disabilities or we love someone who does, we panic. We don't know what it means but we feel frightened, angry, let down again. What are people doing to help and change the trajectory during this second wave?
Today I have decided I am going to stand on my soapbox and say all sorts of things. If you work in health care or know people who do, please share this episode with them.
But they need to listen to the whole show and not just read the blurb about it. They can listen to my piece (thank you so much for including me in this conversation Jeff & Brian), they can celebrate the great ending with Victor and watch the short video with him, Shineeca & Erica
they can learn from Madeline Burghardt about the history of Huronia and other institutions (and read her book Broken to learn more), but they have to listen to Jeff’s interview with Christopher.