Everytime I try out new shoes/insoles/foot bands,

I have a little RPG stats page that I fill out in my head,

including but not limited to:
"Safely walk down stairs"
"Ankle pain"
"Venous malformation pain"
"Good at walking on hard surfaces/sharp things"
"Driving"
"Walking"
It's unfortunate that the driving and walking stats are often always opposed to each other. ><

Do I want pain with walking or pain with driving?

Also
"Swelling day after use"
"Swelling during use"
"Likelihood to reinjure foot"
"Cognitive resources need to walk safely"
A weirdly large chunk of my memory is devoted to memorizing these stats to determine what footwear to use at any point in time. Going outside without an extra pair of shoes (like I did today) is a very risky endeavor. Almost hurt my foot going down the stairs. ><
Yet somehow this pair of shoes are the best yet, though they have a high risk of reinjuring my foot (we'll see how my feet feel tomorrow...)
Sometimes having a disability requires emailing shoe companies to ask if they have any shoes that meet [very specific requirements here]

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More from @AutSciPerson

26 May
Autistic kids who are "high achievers" (i.e. get good grades in school) are often seen by adults as more mature/loser to adults.

There are a few reasons for that. They may -
like talking to adults more than peers
like to talk intensely about topics
Have interesting insights 1/11
They may even prefer talking to teachers rather than students.

They may not like the sensory overwhelm of other students around them.

They may think about life more abstractly or seem to talk about "more mature" topics than peers. 2/11
They also probably notice adults around them treating them more like an adult because of how they act.

They may also want to people-please especially with adults and seek validation, so they may seem more "well-behaved" but that's actually from anxiety. 3/11
Read 14 tweets
25 May
Alternative communication methods are not only for nonspeaking or minimally speaking autistic people.

Being "highly speaking" as an autistic kid does not mean "can express myself in words super clearly all the time even when nearing meltdown/shutdown"

Use typing/writing/etc 1/4
And it certainly doesn't mean "can easily label emotions and explain sensory sensitivities by speaking."

Being able to talk doesn't equal being able to explain everything at all times. For me, 70% of the information I wanted to get out was missing when I speak. 2/4
Email (where you can take time to read and reply without someone expecting you to talk immediately), AAC devices, writing, or typing on a keyboard/phone can be easier ways to talk about stressful subjects or about emotions. 3/4
Read 4 tweets
25 May
Chart of what autistic people may say and what they may mean: Two columns. Left column he...
The chart above should also be paired with this:

Read 4 tweets
24 May
TW ableism

Nearly all autism "treatments" are based in lack of autonomy of the autistic person, hostility, and abuse.

Reading this page and scrolling down to "treatments" is really upsetting.

These are the "autism experts." This is what people trust.

nimh.nih.gov/health/topics/…
Our society is medicating autistic people for being in distress (for "Irritability/Aggression/Repetitive behavior").

Torturing autistic people for being in distress (behavioral therapy to "reduce challenging behaviors").

This "treatment" is due to not being accommodated.
These "treatments" really are nearly as perverse and horrifying as gay people being "treated" via medical and behavioral interventions.

It really is that simple.

This fact becomes clearer for me everyday.

It's sickening.
Read 4 tweets
24 May
This is going to be a really awful thread.

Feel free to ignore it autistic people.

Non-autistic people:
I am going to copy and paste definitions of autism in this thread, from different websites. Websites wanting to "help" us.

Please read how dehumanizing these are. 1/
TW ableism

"ASD is characterized by social impairments, communication difficulties, and restricted, repetitive, and stereotyped patterns of behavior."

"A neurodevelopment disorder that causes social, communication and behavioral challenges." 2/
TW ableism
"People with ASD often have problems with social, emotional, & communication skills. They might repeat certain behaviors & might not want change in their daily activities. Many people with ASD have different ways of learning, paying attention, or reacting to things" 3/
Read 32 tweets
23 May
Something people don't tell you:

Acquiring a PhD doesn't immediately make you successful or happy.

Like sure it's a huge accomplishment but it shouldn't feel like the be-all end-all of your life. Cause if it is, you probably have some things to work through.

1/16
Whether or not I become a "Doctor" isn't going to determine whether I feel successful or not, or at the very least, it shouldn't. Academia is toxic in that you're convinced that "once you do this" you'll be accomplished, or "once you do this" you'll have legitimacy. 2/16
If I continue to be an openly autistic person, I'm not sure how much legitimacy I will have even when I graduate with a PhD, eventually.

That's just the truth. Being autistic trumps any professional credentials you have. And it somehow makes NTs ignore all of your knowledge 3/16
Read 17 tweets

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