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Sarah Ludford 🔶pro-European Profile picture
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26 May, 9 tweets, 4 min read
.@docneilb:
“care.data, the disastrous data-grab project scrapped back in 2016, is back from the dead. And it's bigger than before.”
“millions of people simply will not have a clue that this is happening.
Their right to be informed is not being upheld. As a consquence, they will not be afforded the right to object/opt-out. No radio or TV ads, no letters to individuals, no junk mail to households. On the quiet”
“care.data2 is not about information sharing between healthcare professionals.
It is about data extraction, linkage and analysis: in other words, data mining.”
“care.data2 involves:
- disclosure of your linked, personal info, in anonymised/aggregate/pseudonymised/clearly idenitfiable formats, to 3rd parties
- your total loss of control of the processing, purposes, and dissemination of that information, once in NHS Digital's hands”
“Altho pseudonymised data could quite easily identify you, you cannot stop @NHSDigital from releasing or selling your uploaded GP data to orgs in this format. Nor can you insist that it must not be released or sold to organisations that may hold other information about you”
“care.data2 [compared to care.data]:
• is bigger in scope
• collects more of your personal confidential info
• includes info that is far more sensitive
• is being rushed through, in a far less transparent way”
What is infuriating about this care.data2 is that most ppl would be keen for their data to be used for research, even commercial, if properly informed & reassured about safeguards. My late husband had T1 diabetes & was chair of @JDRFUK. @NHSDigital spoils things by its sloppiness
Indeed @NHSDigital website is v confusing: has ‘myth-busting’ page but it’s about ‘National Data Optout’ which is not same as ‘GP Data for Planning & Research’ digital.nhs.uk/services/natio….
So when asserts ‘we do not sell your data’, this is not true for GPDPR
And it is completely disingenuous to claim in their webpage on GPDPR digital.nhs.uk/data-and-infor…
that ‘@NHSDigital does not sell data’ since goes on ‘it does however charge those who want access to its data’
Charging for access maybe better than giving away free, but is still selling

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More from @SarahLudford

Sarah Ludford 🔶pro-European Profile picture
22 May
“The former sub-postmaster spent 18 months behind bars, was declared bankrupt and since coming out of prison has struggled to find work. He and Balbinder have had to sell their home and now rely on benefits.”

(His outrageous fraud conviction was one of those quashed by Ct App)
“The story of how a great British institution unfairly criminalised hundreds of law-abiding citizens is an astonishing tale of corporate cover-up, political mismanagement and personal injustice.”

There needs to be not only a full public inquiry, but prosecutions of PO bosses
“I still can’t believe we’re living in the UK and this kind of thing goes on. We were guilty until we could prove our innocence.”
Read 4 tweets
Sarah Ludford 🔶pro-European Profile picture
14 Mar
Key point:
‘The Judge confirmed that @ReclaimTS’ assessment of
the law is correct: not all protest is, or can be treated as, illegal
under the Tier 4 rules.’
“unless it is necessary and proportionate to prevent persons gathering to exercise their right to freedom of expression and assembly, having regard to the individual facts and circumstances of the protest in question, such a protest is not prohibited by the Tier 4 regulations”
“this means that Arts 10 & 11 require police to facilitate & uphold the right to protest and that they only prevent it where, following a proper assessment, this is necessary and proportionate in the particular circumstances of the
protest in question”
Read 5 tweets
Sarah Ludford 🔶pro-European Profile picture
12 Mar
I’m sure there is not the slightest reason to worry about Tory govt plans to scrap EU regs post-Brexit to ‘reduce burdens’ on City firms in order to ‘improve its competitiveness’. ft.com/content/387084…
“the City - ever quick to scent an opportunity - is positioning itself to have greater influence over the reshaping of the post-Brexit rulebook”
ft.com/content/199e20…
“Proposals by Lord Hill, former EU fin servs commissioner leading govt’s review into City, to change UK listing rules have been welcomed by financiers keen to attract more flotations, but questioned by investors who fear the London market’s high standards are being compromised.”
Read 5 tweets
Sarah Ludford 🔶pro-European Profile picture
8 Mar
“Fittingly, the Liberal candidate to whom Maxwell gave her support, Jacob Bright, was a prominent advocate of women’s suffrage”
“event was widely recorded in the press, with Yorkshire Post reporting that ‘a woman actually voted!’ Taking a hostile view, it suggested that the polling clerk should have ignored Maxwell’s claim when she appeared to vote, ‘as he would have ignored that of a child 10 yrs old’.”
“Just 5 months earlier, the Commons had rejected – by 196 votes to 75 – John Stuart Mill’s proposal to extend the franchise to women by substituting the word ‘person’ for man in the 1867 Reform Act.”

An appropriate use of gender neutral terminology in legislation...
Read 5 tweets
Sarah Ludford 🔶pro-European Profile picture
5 Mar
Just feeling maudlin - 70th birthday in a week’s time, without Steve.
Not asking for sympathy, I know so many other people have suffered losses.
But it’s a bugger, nonetheless.
Had a lovely chat last week with my mother-in-law (100 in May) when she reminded me that ‘Stephen always joked that he married an older woman’.
This was because I was 2 months older than him!
Cheering myself up with some of my favourite booster tracks:
- Bryn Terfel & the Dunvant Male choir: Calon Lan
- Phil Coulter/Nathan Carter: The Town I Knew so Well
- Rod Stewart: Grace, & Downtown Train
Read 5 tweets
Sarah Ludford 🔶pro-European Profile picture
23 Jan
“Simon Spurrell said he has lost 20% of his sales overnight after discovering he needed to provide a £180 health certificate on retail orders to consumers in the EU, including those buying personal gift packs of his award-winning wax-wrapped cheese worth £25 or £30.”
“He says he had hoped to take part in the ‘sunny uplands’ promised by the government post-Brexit but has instead seen the viability of his online retail come to a ‘dead stop’.”
“To save his business he will now have to switch a £1m investment he was planning to make in a new distribution centre in Macclesfield to the EU, with the loss of 20 jobs and tax revenue to the UK.”
Read 6 tweets

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