I'm just remembering the time when there was a really really loud sound at a seminar and everyone around me grabbed their ears and I thought to myself, "oh so it's okay to do that?"
And then realized I taught myself to not do that for every single day for my entire life.
And then realized I taught myself to not do that for every single day for my entire life.
If your patient is autistic and you're assessing their pain, treat their responses like you would someone with chronic pain.
I literally have a pain-with-walking disability and my hyperacusis pain is worse than that 95% of the time.
I literally have a pain-with-walking disability and my hyperacusis pain is worse than that 95% of the time.
And it's not to say my pain with walking is actually completely fine or easy to cope with - it's not.
That's how bad my hyperacusis eardrum pain is. I went to work and walked for 1.5 years in pain and only the pandemic made me realize it was at least 6/10 pain daily.
That's how bad my hyperacusis eardrum pain is. I went to work and walked for 1.5 years in pain and only the pandemic made me realize it was at least 6/10 pain daily.
So what would I rate my hyperacusis pain?
I don't know, because I've always had it. But it would definitely be rated as worse than a 6/10 I guess. I've thought it "wasn't a big deal" so much that I thought it could never be a 7-9 out of 10. Maybe it is for NTs though?
I don't know, because I've always had it. But it would definitely be rated as worse than a 6/10 I guess. I've thought it "wasn't a big deal" so much that I thought it could never be a 7-9 out of 10. Maybe it is for NTs though?
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