@NAMIAdvocacy 2/ I had to file a complaint with the Santa Clara Civil Grand Jury, which investigates the county's business. The civil grand jury voted to investigate my complaint.
@NAMIAdvocacy 3/ The Santa Clara Civil Grand Jury voted to investigate my complaint. I testified before them. (I'm forbidden by law from disclosing my testimony or what the civil grand jury members said.)
@NAMIAdvocacy 4/ The Santa Clara Civil Grand Jury interviewed stake holders throughout the county, at medical clinics, other places. Issued subpoenas.
@NAMIAdvocacy 5/ The civil grand jury wrote their report, presented to the Santa Clara County Board of Supervisors, on the civil grand jury's website, and was reported on by San Jose Mercury News newspaper. Central issue that medical providers have is the gov's LOW reimbursement rate.
@NAMIAdvocacy 6/ The government needs to get serious and raise the reimbursement rate for providers so that it is competitive. That's the only way we will get seen and proper care.
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@hardlynormal@DHCS_CA@tam_tweeets@GavinNewsom I'm 59. Former paralegal. Epilepsy since age 6, diagnosed & treated at Stanford. I lost decades of a productive life because it was legal, until the passage of the Affordable Care Act, to not insure epileptics. I had co-occuring probs, no medical help. -Michaela cc: @EpilepsyFdn
@hardlynormal@DHCS_CA@tam_tweeets@GavinNewsom@EpilepsyFdn 2/ When the Affordable Care Act, I chose my Dr that I had while working with a law firm. Same medical group. They would NOT see me. Told me: "No cash, no care." Big medical group/Sutter Health, Palo Alto Medical Foundation.
@hardlynormal@DHCS_CA@tam_tweeets@GavinNewsom@EpilepsyFdn 3/ It was unlawful to see another provider not on the preprinted card. I called Santa Clara County. Nurses on health line said that this was my medical provider in system. They "should" see me. They wouldn't. -Michaela
@zakwilliams Hi Zak, Condolences to your family on the anniversary of your dad's death. Thanks for your honesty. I'm 59, have had epilepsy since age 6. I lost decades of a fully productive life because it was legal to not sell health insurance to epileptics. -Michaela /1
2/ @zakwilliams With the advanced in science, I learned that my crushing depression and anxiety were part of the epileptic brain, and that it's not just seizures. When I watch drs and researchers on YT vida discuss epilepsy, co-occuring problems, I've tears on my face.-Michaela
So I took an action step today and emailed @MayorJerryDyer about getting a motel room for me in north Fresno, CA. I heard back from a city assistant: no motel vouchers. I'm 59, with epilepsy, 3rd yr in car. No drugs, drinking, crimes. -Michaela cc: @Jason_Elliott@SecFudge
2/ The woman from the @CityofFresno emailed me that I could stay in Fresno's shelters, a hell on earth which I've already done, and I will NOT be returning to those unaudited hell holes. -Michaela
3/ @SecFudge@Jason_Elliott@MayorJerryDyer@Esmeralda_Soria I've epilepsy. 59. Since age 6. Complications from epilepsy. I've ALREADY been in the hospital! I don't have a broken moral compass! I don't need hand holding and told what to do. I need a safe place to live! -Michaela