2/ Arguably the most devastating set of #ALS symptoms are the bulbar symptoms: slurred, then loss of, speech; difficulty swallowing, then loss of ability to swallow; involuntary muscle spasms affecting the jaw, face, voice box, tongue, and throat...
3/ I do NOT have hereditary #ALS, and, 3 years since diagnosis, I somehow, mercifully, have NO bulbar symptoms...
4/ But, my arms/hands, and legs get weaker everyday, breathing is getting more and more difficult on the way to failing altogether, there are NO effective #ALS treatments, there is NO cure, and it is fatal in 100% of cases...
5/ THAT is how brutal #ALS / #MND is. You can be spared some of the worst symptoms and varieties of this heterogeneous disease, and yet it will still be hellish and unavoidably fatal.
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