@AutSciPerson@mstdn.social Profile picture
Sep 23, 2021 20 tweets 4 min read Read on X
I think I just realized why autistic burnout is so bad.

It's because when neurotypical people reach their limits, they can't go on.

When autistic people reach their limits, they continue because they know they have to continue to be considered valuable.
1/
I was told that if I get burnt out, I won't be able to do anything, so I should rest.

What I didn't say because I was still thinking it through,
is that when I get burnt out, I go on for weeks or months more because that is expected of me and I Cannot Let People Down.
2/
And so often autistic people are constantly pushed to their limits even at 4, 5, 8 years old. Constantly.

We are so often already at a level of stress from NT expectations and our environment that neurotypical people don't even comprehend it.
3/
Most autistic people operate on a higher level of stress at a constant rate.

Neurotypical people will have lows, mediums, and highs. Sometimes they'll stay at a high for a long time and burn out.

But autistic people are never allowed low stress if we want to be seen as human
4/
I don't know if abled non-autistic people realize how long I can run on fumes for. Because I'm so used to that being expected of me.

And I do think dissociating plays a role in being able to do this.
5/
I don't just "burn out" when I run out of energy, I go until the gas tank has negative space.

Here's the difference for autistics:
I don't realize in the moment that I'm running on empty. I think I still have plenty of fuel left to get me going somewhere.
6/
Only to later realize, weeks or months later, that I have smoke coming out of the engine.

THAT'S when I realize I should stop the car.
I don't even have a "gas is empty" indicator on my dashboard, I just know if I don't go 60 miles per hour people are going to be upset.
7/
If I reflect on my current energy levels and stress, I'm probably in burn out right now.

But all I'm thinking is "Well I just need to get to this part and then I'll rest.." or "I just need to finish these next 3 weeks out and then I'll rest.."
8/
At this point I don't even know if 1-2 days of rest would help because I'm already so far gone in terms of stress and energy levels (I've been trying to work at least one day every weekend).

I think I would need a week off, and I can't afford a week off right now. So I work.
9/
Maybe this is why non-autistic people don't often understand when we -can- do something but when we shouldn't?
When we say we can't and then they tell us to do it anyway?
So we continue to go along because we know there's no other option and fighting is too much energy.
10/
Neurotypical people might have to rest after high stress situations,

but all I can think about right now, all I know is that I'm going to pay for this. When I keep going this next week, and the next, and the next, I'm going to pay for this.

11/
I'm going to pay for this in being able to physically speak, in being able to think coherently, in being able to plan, in being able to eat.

I just know I'm going to pay for this but there is no other option.

So often, there is not another option for us.
#ActuallyAutistic

12/
Using the word "tired" doesn't do what I'm feeling justice.

I have a sleep disorder, I know what tired, sleepy, exhausted means.

It's more like completely worn down, especially mentally. But my brain still thinks "I have 5% energy left so it's fine"
I am hungry and instead of eating the breakfast I have sitting here I wrote this entire thread. My stomach's been growling for the last 3 hours and I've just.. completely ignored it. Because I'm not hungry.

It just can't be compared to non-autistic stress. It's not the same.
It's like everything is being held together by a piece of tape, and so everything "looks" like it's working for quite a while,

and then the piece of tape falls off and all the pieces just go everywhere.
And the actual worst thing I can do to myself right now is try to convince myself that I'm fine, which is what my brain is currently trying to do.

"It's not a big deal, you're fine! Look you're eating now"

Actually just gaslighting myself cause that's what I've had to do before
I have to say, I think the #Spectrum10K debacle really broke me.
So we use the words "autistic burnout"

But I'm realizing that it's not just burnout like neurotypical people define it,

It's burnout -past- burnout. It's working while in burnout already.

That's why it's so difference and so detrimental. We're not stopping at burnout at all.
If anyone wants to share this thread in blog post form,

it's here -
autisticscienceperson.com/2021/09/26/aut…

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More from @AutSciPerson

Oct 16, 2023
The really interesting part to me about ABA is that there's an assumption that autistic people are somehow more robotic and less human,

but the act of manipulating autistic children into "being more human" actually turns them into compliance robots.

1/4
If a kid (any kid) is taught that if they say "Hi how are you?" and every time they do that, they get a reward, then here's what they don't learn:

1. Why people say that
2. Why anyone would be motivated to say that
3. That they should do things without getting a reward.

2/4
When that kid grows up, they are not going to say "Hi how are you?" unless they get a reward, because they've been taught that the only thing that matters is external reward. And that completely gets rid of any internal motivation that kid had to connecting to actual people.

3/4
Read 4 tweets
Sep 18, 2023
When you're an autistic person you have to take neurotypical people's comforting lines of "I'm sure it'll be fine" with a giant mountain of salt, especially when it comes to social interactions and how you'll be received. I always get friendly-tricked into believing it. 🤦
Sometimes I want to reply, "I appreciate that you are trying to comfort me but I'm not sure you understand the totality of my reality in social situations. I will at some point inherently say the exact wrong thing to get people to dislike me and will have no idea this occurred."
And even worse is when I know it's the exact wrong thing to say but I am compelled to say it out of importance/activism/honesty and it goes even worse than I could have imagined.
Read 11 tweets
Jun 19, 2023
I know people talk about disability tax, and tonight I'm thinking about the autism tax: Having to stock up on processed/pre-made food because you never know when you're not going to be able to eat a different cooked meal.
I keep seeing all these finance people telling others to stop spending so much money on groceries and people respond with "oh we can do that" but all of the high-priced items are things I need to fall back on, like cereal and frozen food and smoothies because food sensitivities.
Having money as a disabled person makes a *huge* difference in quality of life.

For example, vibrams came out with shoes that have proper soles on them, so my feet don't tingle anymore (potential neuropathy). They're $175 a pair and you can't use an HSA to buy them.
Read 9 tweets
May 8, 2023
CW eating, food

Disabled people shouldn't have to be ashamed of what they can or cannot eat.

Sometimes I live off of cereal, microwavable mac and cheese, and pre-bought smoothies.

For cooked meals that I like to eat, sometimes I don't finish my food (a lot of times).

1/5
There is a ridiculous amount of shame built up in autistic people particularly for not eating/liking/trying/finishing food and I just had this thought tonight of, "Oh, all of those things are made up" [and the points don't matter].

2/5
Ideas I was taught about food were completely made up. Creating value judgments for what food someone eats, how much of it they eat, how many new foods they try, whether they eat leftovers - All of that is just made up by the people you're around and messages we see as kids.

3/5
Read 5 tweets
Feb 11, 2023
So since you have this huge platform, where you can help people combat anti-trans bills that are being passed right now & make people aware of the high assault, murder, and suicide rates of trans people..

You're going to do that now right? Cause you're a trans ally? Make change?
There's this whole idea that if you can't make a HUGE impact immediately that advocacy doesn't matter.

This is a person who literally could help make change to actually be an ally, and has decided that it's more important to make a video on a hot topic instead.
The only reason trans people have latched onto this game is because no one is listening to trans activists who are talking about the bill in Utah that is literally PREVENTING TRANS TEENS from living their lives.

Cis people would rather talk about video games.
Read 6 tweets
Feb 11, 2023
Let's talk about food consistency and instant gratification!

My spouse was nice enough to pour my cereal for me yesterday. I eat cereal that has dried strawberries in it and he told me today that he gave me extra yesterday.

Well, I didn't have the heart to tell him..

1/6
Breakfast is my one consistent meal each day, especially on workdays. It's easier for me to eat all my cereal if each bite is consistent.

I actually would prefer to have less strawberries one day if it meant that each day had about the same ratio of cereal to strawberries.

2/6
About every other bite should have a strawberry in it, ideally. It was harder for me to finish my breakfast this morning because there weren't very many strawberries today.

It's such a seemingly minor thing but it can affect whether I get enough food in the day.

3/6
Read 6 tweets

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