I think I just realized why autistic burnout is so bad.
It's because when neurotypical people reach their limits, they can't go on.
When autistic people reach their limits, they continue because they know they have to continue to be considered valuable.
1/
I was told that if I get burnt out, I won't be able to do anything, so I should rest.
What I didn't say because I was still thinking it through,
is that when I get burnt out, I go on for weeks or months more because that is expected of me and I Cannot Let People Down.
2/
And so often autistic people are constantly pushed to their limits even at 4, 5, 8 years old. Constantly.
We are so often already at a level of stress from NT expectations and our environment that neurotypical people don't even comprehend it.
3/
Most autistic people operate on a higher level of stress at a constant rate.
Neurotypical people will have lows, mediums, and highs. Sometimes they'll stay at a high for a long time and burn out.
But autistic people are never allowed low stress if we want to be seen as human
4/
I don't know if abled non-autistic people realize how long I can run on fumes for. Because I'm so used to that being expected of me.
And I do think dissociating plays a role in being able to do this.
5/
I don't just "burn out" when I run out of energy, I go until the gas tank has negative space.
Here's the difference for autistics:
I don't realize in the moment that I'm running on empty. I think I still have plenty of fuel left to get me going somewhere.
6/
Only to later realize, weeks or months later, that I have smoke coming out of the engine.
THAT'S when I realize I should stop the car.
I don't even have a "gas is empty" indicator on my dashboard, I just know if I don't go 60 miles per hour people are going to be upset.
7/
If I reflect on my current energy levels and stress, I'm probably in burn out right now.
But all I'm thinking is "Well I just need to get to this part and then I'll rest.." or "I just need to finish these next 3 weeks out and then I'll rest.."
8/
At this point I don't even know if 1-2 days of rest would help because I'm already so far gone in terms of stress and energy levels (I've been trying to work at least one day every weekend).
I think I would need a week off, and I can't afford a week off right now. So I work.
9/
Maybe this is why non-autistic people don't often understand when we -can- do something but when we shouldn't?
When we say we can't and then they tell us to do it anyway?
So we continue to go along because we know there's no other option and fighting is too much energy.
10/
Neurotypical people might have to rest after high stress situations,
but all I can think about right now, all I know is that I'm going to pay for this. When I keep going this next week, and the next, and the next, I'm going to pay for this.
11/
I'm going to pay for this in being able to physically speak, in being able to think coherently, in being able to plan, in being able to eat.
I just know I'm going to pay for this but there is no other option.
Using the word "tired" doesn't do what I'm feeling justice.
I have a sleep disorder, I know what tired, sleepy, exhausted means.
It's more like completely worn down, especially mentally. But my brain still thinks "I have 5% energy left so it's fine"
I am hungry and instead of eating the breakfast I have sitting here I wrote this entire thread. My stomach's been growling for the last 3 hours and I've just.. completely ignored it. Because I'm not hungry.
It just can't be compared to non-autistic stress. It's not the same.
It's like everything is being held together by a piece of tape, and so everything "looks" like it's working for quite a while,
and then the piece of tape falls off and all the pieces just go everywhere.
And the actual worst thing I can do to myself right now is try to convince myself that I'm fine, which is what my brain is currently trying to do.
"It's not a big deal, you're fine! Look you're eating now"
Actually just gaslighting myself cause that's what I've had to do before
I have to say, I think the #Spectrum10K debacle really broke me.
So we use the words "autistic burnout"
But I'm realizing that it's not just burnout like neurotypical people define it,
It's burnout -past- burnout. It's working while in burnout already.
That's why it's so difference and so detrimental. We're not stopping at burnout at all.
I've been reminded tonight that I have missed 4 of my family members funerals because I didn't want anyone else in my family to die. I've spent the last week quietly asking people to wear a mask so no one else dies, particularly my friend with diabetes, who initially.. 1/9
Didn't wear a mask. I've had to explicitly ask my group of friends, 2 of which are healthcare workers, to mask during this vacation. One now only masks if it says immunocompromised or cancer on a patient's chart. Not all the time anymore. (No external factors have changed). 2/9
They know I've gotten COVID multiple times and that I have POTS from it. Yet still no one wants to be in community anymore. You have to be the villain to get anything done. I took on this role. It's the end of the vacation and no one has symptoms so far. I am exhausted. 3/9
I genuinely cannot believe that for so many autistic people, we have had to deal with awful sensory experiences for DECADES, and the only answer I get from neurotypical people who don't want to wear a mask, after asking multiple times, is "I don't want to" - 1/9
Oh ok, we are accepting that answer as valid now?! Why wasn't that an acceptable answer for me for years?!! Why did I have to go to the grocery store or wear a dress when I "didn't want to" and it caused horrible distress?!
Why do neurotypical people except themselves 2/9
With the absolute most minor inconvenience that could lead them to saving their own life and others??
After "negotiating," my family wore masks in the airport and plane. My parent asked when going to the grocery store, "Do I have to wear a mask? It'll only be a few minutes" 3/9
So many allistic people think that if autistic children struggle in their family's environment that they "can't be independent" when 80% of the problem is that the autistic child has been *forced to live in the family's sensory environment* in the first place. 1/4
As an adult I don't have to have the TV on at all times, I don't have to empty the dishwasher super loudly, I don't have to use a loud vacuum, and I can decide when to use the washer/dryer. I don't have to have all the lights on, or eat certain things at certain times. 2/4
So many problems that were "problems" go out the window. I didn't have to have someone brush through the knots in my hair quickly, I could do it by hand even if it took an hour. I didn't have to eat whatever vegetable was picked out that day, I could have the same one again. 3/4
Trying to write this autism philosophy paper really has me thinking about autistic neurology. It seems like autistic people are simply affected more easily by things. For example, there's research showing it's hard for NTs to solve problems or talk while making eye contact.
1/11
And in situations of duress and extreme overwhelm, neurotypical people likely might stim or yell or show "extreme" behaviors. Part of me thinks autistic "behavior" is from having our senses turned up X100 compared to NTs and then being forced to live in a society of NTs..
2/11
But then when thinking about social communication and what an average autistic person values vs. what an average NT values (social niceties, softening truths), that doesn't seem explainable by amped up sensory processing.
The really interesting part to me about ABA is that there's an assumption that autistic people are somehow more robotic and less human,
but the act of manipulating autistic children into "being more human" actually turns them into compliance robots.
1/4
If a kid (any kid) is taught that if they say "Hi how are you?" and every time they do that, they get a reward, then here's what they don't learn:
1. Why people say that 2. Why anyone would be motivated to say that 3. That they should do things without getting a reward.
2/4
When that kid grows up, they are not going to say "Hi how are you?" unless they get a reward, because they've been taught that the only thing that matters is external reward. And that completely gets rid of any internal motivation that kid had to connecting to actual people.
3/4
When you're an autistic person you have to take neurotypical people's comforting lines of "I'm sure it'll be fine" with a giant mountain of salt, especially when it comes to social interactions and how you'll be received. I always get friendly-tricked into believing it. 🤦
Sometimes I want to reply, "I appreciate that you are trying to comfort me but I'm not sure you understand the totality of my reality in social situations. I will at some point inherently say the exact wrong thing to get people to dislike me and will have no idea this occurred."
And even worse is when I know it's the exact wrong thing to say but I am compelled to say it out of importance/activism/honesty and it goes even worse than I could have imagined.