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Discover and read the best of Twitter Threads about #ActuallyAutistic

Most recents (20):
It’s mental health awareness week-and as 1 in 4 of us will suffer from a mental illness I’d like to share with you my story.I have nothing to hide and no qualms about delving into my very candid story about my mental health. Trigger warning: suicide idealisation and a long read..
began feeling ‘strange’ around August time 2017. I can’t put my finger on what triggered it or what led me to decline so quickly but I just didn’t feel ‘right’.It all came to a head at Christmas time when I drove home on the motorway drunk after a fall out during a night out
I didn’t fear for my life, I already had it in my head that I was ok if I didn’t survive. Things got worse after that. I made it into work the first day back after Christmas and honestly didn’t know how I hadn’t crashed my car because that’s all I was thinking about doing
Read 19 tweets
So I've been thinking about this for a while now and I'd like to share my thoughts on the language we use, and how we think about, "challenging behaviour" (CB). I'd like to replace the term with Distressed Behaviour (DB)
For me the change from CB to 'behaviour that challenges', while welcome, doesn't go far enough. It also requires some clunky linguistic gymnastics to say. I think we can do better.
CB is usually defined as "Culturally abnormal behaviour(s) of such an intensity, frequency or duration that the physical safety of the person or others is likely to be placed in serious jeopardy, or behaviour which is likely to seriously limit use of, or result in the person...
Read 31 tweets
CN nazis

I've only read half of this, but was anyone Jewish or Roma involved with this?

Because when you're talking about nazis, you really should be
Quotes like "as if they’d discovered that their own grandfather had an SS uniform at the back of his closet" are... not great

Almost everyone who wasn't a victim of the holocaust, was complicit. They let it happen. They watched our murder and didn't intervene.
I *never* saw Asperger as any sort of great person

Anyone who rose high in the 30s and 40s in Austria was, at the very least, sympathetic enough to the nazi party that they weren't removed
Read 50 tweets
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Some thoughts on today's paper in @MolecularAutism regarding Hans Asperger's complicity in Nazi crimes against people with disabilities. (Thread) molecularautism.biomedcentral.com/articles/10.11…
The paper makes a fairly compelling case that Hans Asperger was complicit in the Nazi eugenics project, using a wealth of documentary evidence that the author is to be commended for compiling. (1)
The paper has some flaws - for example, it criticizes @stevesilberman's NeuroTribes for not including this info on Asperger, when the author is very aware that the reason for this is that he declined to make his research available to Silberman. But overall, it's very solid. (2)
Read 23 tweets
Thread about "functional labels" and assumptions around verbal and other types of communication.
I am an #ActuallyAutistic adult, spouse of an #ActuallyAustistic adult (@bogiperson), and a parent of an #ActuallyAustistic child.
This thread is in reaction to @brookewinters33 's thread earlier today on functional labels (please check it out) and some of the antagonistic responses it gathered.

I will try to explain why "functional labels" are harmful in our lives as an #ActuallyAutistic family.
Useful context: I am an immigrant in the US. When my child was first diagnosed at 18 months (I was still with my ex at that time) we were insistently told by multiple professionals that we MUST use functional labels. #ActuallyAutistic
Read 35 tweets
It is now #AutismAwarnessDay and as an #ActuallyAutistic person I'd like to talk about @autismspeaks! Autism Speaks is a hate organization started by a non-Autistic oligarch which is reviled by Autistic People and those who have true solidarity with us.
Arrogantly the Bob Wright and his now late wife Susan Wright as well as the higher ups at Autism Speaks have claimed that Autism Speaks, speaks on behalf of autistic people that autistic people are voiceless and Autism Speaks is our champion! Its complete and utter horse shit!
The equivalent of what Autism Speaks has done would be if a straight cis oligarch made an organization called LGBT Speaks and claimed to speak for the LGBT community while silencing members of the LGBT community. Their behavior is the unmistakable behavior of an oppressor!
Read 24 tweets
I want to talk about autism and vaccines. I know it's all been said before, but I gotta say it, for me.

#ActuallyAutistic
Vaccines are safe. They don't contain poisons, or Mercury. They don't give kids autism or mental retardation.

They give kids immunities to common, deadly diseases.
I'm a mom.

When preparing to have my kid there was a ton of reading to do. A ton of permissions to sign.

"Do you authorize us to give the baby a shot of potassium. Possible side effects include..."
Read 14 tweets
Tonight, I'm going to be talking about Hyperlexia. For those who don't know, here's the wikipedia article on it:

en.wikipedia.org/wiki/Hyperlexia

"a child's precocious ability to read." Except it does affect us as adults. and it is a learning disability.
As a child, i picked up reading very fast. I was reading novels in Grade 2, and by grade 7, I was reading at a 3rd-4th year University level and had a vocabulary somewhere around most masters students.
Even now, I read quickly, and when it hits special interest time, I won't be able to stop. Like when I discovered the Dresden Files novels in ~2007.

And read all 10 out at that time in one weekend.
Read 16 tweets
I watched The Brainwashing of My Dad last night and it explained so much for me but was so exhausting. In 2015 it didn’t even touch on the way the rightwing extremists would use fb or reddit and YouTube to radicalize and warp my previously open minded family and friends
I keep telling people in my life the scariest thing about fb is the way it drives wedges between neighbors and families, radicalizing social bubbles until we don’t recognize each other. People are only just now criticizing fb “cause it stole our data”. Not cause of the wedges.
The Brainwashing of My Dad didn’t have to mention online media or 2016 at all, you can easily extrapolate from what’s been going on in talk radio and Fox and right wing emails how decades of focused, intentional work on the right got us here.
Read 12 tweets
Laptop bans are a big topic at the moment, so I’d like to talk about my laptop use in class as a mature student with ADHD without academic accommodation.
So, what am I doing on my laptop when it’s open in class? Honestly, I’m rarely taking notes.
That’s not to say that others aren’t taking notes or benefitting from laptop usage in a purely academic way, but I’m rarely taking notes because I rarely take notes anyway.
Read 37 tweets
Just want to remind everyone - especially my allistic followers - that #actuallyautistic people are not steryotypes.

Some of us are super sensitive to noise and light and must wear headphones and sunglasses.

Some of us are *under* sensitive and actually seek these things out.
Some of us are super picky eaters and eat the same three foods everyday.

Some of us need regular variety of tastes and textures.

Some of us have special interests in mechanical things: clocks, trains, cars

Some of us have SPiN in astrophysics, makeup, or animals.
Some of us prefer to flap and vocalize to stim

Some of us scratch, twiddle, or bite our lips.

Some of us say socially "inappropriate" things loudly in public

Some of us mask very well or have social anxiety or both.
Read 10 tweets
the abuse of autistic children is not only tolerated,

but is celebrated, honoured and rewarded.

telling stories about how you abused, tortured and traumatised us will make you famous & rich.

the outcry of the #actuallyautistic community is always seen as bad faith slandering.
the abuse of autistic children is so expected, so normalised, so glorified that many symptoms of trauma and ptsd are starting to be seen as autistic traits.
trauma will cause autistic children to show more "problematic behaviours".

trauma in non-autistic children often leads to

- regression
- incontinence
- dissociation (staring into space, withdrawing into yourself)
- aggression
- anxiety
- irritability

and much more.
Read 9 tweets
Chp 32: BURDEN-SHIFTING

#KaeEditsAUWE #ElmoMum

Please let this torture be over soon.
"What motivated this ordeal was a fundamental truth--that I cannot be happy if my son cannot function competently in his community."

Then she says he forgives her.

#KaeEditsAUWE #ElmoMum

It's true that autistics tend to be INCREDIBLY FORGIVING, often past reason.

Until you go
too far. And then you're pretty much dead to so many of us.

I wonder what it will take for Zack?

#KaeEditsAUWE #ElmoMum
Read 14 tweets
Chp 21: THE COMMODITIZATION OF HOPE

#KaeEditsAUWE #ElmoMum
And we're in a chapter praising the Tomotis method of 'training'.

I don't know what it is, but just because of the fact that the TODAY SHOW featured it, (they're a pawn for Auti$m $ peaks or so I've been informed.)

and based on how it's described, it's more autistic torture.
Must be nice to have enough ready cash to drop 3k per treatment on this 'therapy'.

I don't make that in a year.

#KaeEditsAUWE #ElmoMum
Read 15 tweets
Hi! I’m #ActuallyAutistic, and I’d like to clear up some myths about my disability. First: yes, it IS a disability! My brain works completely differently than yours does, often interfering or limiting my daily functioning. 1/
Second, it’s a spectrum, so the way autism manifests in me isn’t the way it looks in everyone (or probably anyone but me). Third, high- and low-functioning are outdated, ableist terms. They are often used to differentiate between verbal, “independent” autistics, and 2/
non-verbal ones who may not be able to live independently. However, unless you're the autistic in question, you don’t know how well someone functions or not. More on that later. Autistics have empathy. Because we often don’t know how to process crises (or any social situation) 3/
Read 23 tweets
I want to talk a little bit about being #ActuallyAutistic #autistic in the wake of #MassShootings

This is going to be a long thread.
I will also be willing it slowly because some of the side effects of the thing I take to not kill myself are

- difficulty concentrating
- trouble organising thoughts
- forgetfulness
There have been more school shooting in my lifetime than years.

In 2017 there were so many mass shootings that I lost count.

I cannot remember a time when our schools did not teach us to prepare for a shooter attacking us.
Read 25 tweets
You know what? I’m really losing my patience with “autism parents” (not a thing - your child is not autism) right now.

There are many #ActuallyAutistic people having important discussions on Twitter. We are figuring out world that was not made for us.
We are talking about things we find easy and things we find hard, our likes and dislikes, how we adapt, how we wish society would adapt to us.

These conversations are very new. Particularly for non-men. It has always been seen as a ‘male syndrome’. It is not.
So when we are having discussions and an autism ‘advocate’ comes and shuts us down by telling us we’re ‘wrong’, what exactly is that doing?

Well I’ll tell you, from my POV it’s butting in to a conversation between autistic people about their lives when you’re not autistic.
Read 13 tweets
I want to do this too!! So many cool threads!

📚 1 like = 1 book in my TBR for 2018 📚
I will try to do it with Amazon links (US Amazon affiliate links as usual) so you can preempt me and read the books even faster :D
1: Juniper Leaves: The Otherworldly Tale of a Lonesome Magical Girl by @JazJoyner

* I love magical-girl stories
* Black nonbinary author
* Fabulous-looking cover!!
* I just got a copy

amzn.to/2CsdD6o
Read 104 tweets
Autistic people are human beings. We can and must make our own medical choices, especially about procedures as invasive+permanent as sterilization.

#BoycottToSiri
Forcible/involuntary sterilization because you're afraid of someone like me reproducing? Direct and clear example of modern eugenics.

#BoycottToSiri
You can't imagine your son in a sexual situation because he is autistic? You have a serious lack of imagination. Autistic people span the entire sexual and asexual spectrums.

#BoycottToSiri
Read 57 tweets
I'd also like to talk about my experience of immigrating-while-disabled bc this is a really important topic that there's little info about.
In late 2014 I was offered a 12-month research contract in the UK. I accepted eagerly bc it was a great position & an adventure.
I thought, because the UK has a well-known public healthcare system, and I'd be a tax-paying resident there...
Read 91 tweets
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