Discover and read the best of Twitter Threads about #ActuallyAutistic

Most recents (24)

Do other #NeurodiverseSquad or #ActuallyAutistic ppl have thoughts on good ways to talk to kids about brain difference, w/o overstating things, leading them, or leaving misunderstandings unaddressed?

I don’t have kids, but I’m an Aunt and my niephews are def weird-brained…
…though I undxed except for ADHD in one case.

I’m not concerned w labels or dx’s but I do feel strongly about them being able to talk about the things going on w them and being a resource as they figure stuff out.
At the same time, I want to be sure they don’t just take my word for it. I don’t want to be overwhelming them, imposing my biases, or inhibiting their ability to figure themselves out.
Read 5 tweets
Thread: There are benchmarks in this world and I know, for me at least, measuring yourself against them can be massively damaging to your mental health. "They're stressed and do x, so I shouldn't complain". So let's get this out there now, it's okay to say you are struggling. 1/
I'll hold my hands up here that I am a hypocrite. I'm struggling, and even I recognise that taking a long weekend doesn't solve stresses and issues which have been building up for month and years, but I still won't talk about it. NOT AN INVITATION FOR ADVICE FOLKS. 2/
I've got a pretty good reason for that though, experience. Experience as an #ActuallyAutistic tells me that if I try and talk about what gets to me, or why I am struggling, the person I am talking to will inevitably blame it on my being autistic. 3/
Read 11 tweets
1. Dr. Proudman is a spokesperson for the multi-billiion dollar government funded, non profit for profit Ponzi scheme industry. They don’t care about victims and they don’t care about the truth.

Lily-Rose wrote on Instagram in 2016…
2. “My dad is the sweetest, most loving person I know, he’s been nothing but a wonderful father to my little brother and I, and everyone who knows him would say the same.” Image
3. Lily-Rose was used by #AmberHeard friend iO for his “Self-Evident Truths”photo shoot celebriting LGBTQI ppl & cleverly mislead the public to wrongly assume the 15 year-old was gay/bi essentially outing her. This is what caused #JohnnyDepp to ❌ iO…
Read 25 tweets
1/10 I’ve heard the ABA community aren’t happy with @AsIAmIreland over their recent stance on ABA “and related therapies” but that the PBS community are happy.
2/10 ABA and PBS are the same thing. This is why releasing a statement taking a stance on “other related therapies” but not actually naming PBS/social skills training is completely pointless and @AsIAmIreland are aware of this.
3/10 PBS therapists ARE ABA therapists under a different title. Their qualifications, backgrounds and methods are all based on ABA.
To become a qualified PBS therapist you have to do ABA first.
Read 10 tweets
*New* article, More People Are Learning The Truth About ABA

Popular media has begun picking up on both the science and the sentiment…

#ADHD #Autistic #ActuallyAutistic #Autism #Neurodivergent #Neurodiversity #Writers #WritingCommunity #WritersLift #Write
In May, an opinion article was published in Fortune Magazine discussing the controversy surrounding ABA. Written by a lawyer named Ariana Cernius, the article outlines some of the problematic history & legal issues associated with ABA.…
This week, an article was published from my home province of Ontario. The reporter, @JessicaRDurling, included multiple perspectives in her story. Durling brought together voices from families, proponents of ABA, as well as Autistic self-activists who speak out about its harms.
Read 7 tweets
1/ This isn’t a well thought out thread, it’s more of a burnt out rant and a few thoughts about having a career in adult disability services and supporting autistic people, context as always is Ireland:

2/ I was speaking to a person with 15 years exp in adult disability services, we’re both interested in working in advocacy. Before talking to me they thought autism was a conspiracy because it wasn’t around when they were growing up, they knew nothing about autism at all.
3/ We spoke for less than half an hour, or more-so I went on a rant about autism for that time. She said I was incredibly smart and passionate and would be a fantastic advocate, we also both agreed that realistically I have no shot of getting the job while she does.
Read 12 tweets
"There are legitimate situations where an autistic person needs to be able to put their autistic behaviours aside. For example, how about a job interview"--Bruce McIntosh

🤮… "There are legitimate situations where an autistic pers
Me: "Oh, I'm sorry! I forgot to leave my autism at home for our job interview. Here, let me stick it in my purse, so as to make you more comfortable interacting with me, regardless of my actual qualifications for this job."
"put their autistic behaviours aside".

They're not "autistic behaviours", they're *human* behaviours from an Autistic human being. There is a difference: autism is our *neurology*. Being Autistic impacts one's entire brain & body. We can't just "set it aside" like an accessory.
Read 11 tweets
I’ve heard this said about my son on more than one occasion, “he seems to think he can do what he wants, and doesn’t have to do something if he doesn’t want to.”

Um, well, yes.

He’s a human being after all, with free will and autonomy.

#GentleParenting #Parenting #WritersLift
Certainly all of our actions have consequences, and I mean naturally-occurring consequences, not adult-imposed punishments.…

#MediumWriter #MediumBlogger #ParentingBlog #ParentingTips #ParentingAdvice #MentalHealthAwareness #ADHDAwareness #Oppositional
Read 7 tweets
Happy #AutisticPrideDay! When ppl tell you they are #ActuallyAutistic—BELIEVE them. When #Autists say realizing they are #Autistic literally saved them—BELIEVE them. When an Autist says stop using ableist language—LISTEN so you may learn. Graphic of a brain in colors of the light spectrum with a wh
Do NOT speak over #ActuallyAutistic people even if you know any other Autists—LISTEN LISTEN LISTEN. Self Dx IS valid. Stop with functioning labels, now. We are NOT failed neurotypicals—we are exactly how we are meant to be. There is ***no*** such thing as “looking Autistic.” —
#SoyAutista e increíblemente orgullosa de formar parte de la gente #TEA #ASD…
Read 4 tweets
The “Gold Standard” for Autistic Children.

So many Autistic people explain how & why ABA is abusive & harmful, yet many professionals continue to push it.…

#ADHD #Autistic #ActuallyAutistic #Autism #Neurodivergent #Neurodiversity #Writers #WritersLift
I have heard this line so many times: “They told me ABA therapy was the ‘gold standard’ for Autism.”…

#WritingCommunity #WritersSupportingWriters #ADHDSupport #CelebrateNeurodiversity #AutismAwareness #AutismAcceptance #AutisticPride #AutisticPrideDay
Professionals need to explain exactly what they mean by that, because gold standard is subjective; it will mean different things to different people.

Successful supports (as opposed to "therapies") will mean different things to different people.

What does it mean to the CHILD?
Read 7 tweets
Long thread: Okay, so apparently it is #AutisticPrideDay, which I didn't actually know existed. Here's my, somewhat grumpy, thoughts on that. Usual disclaimers on an #ActuallyAutistic thread, I'm only talking about my perspective not any other autistic individual's. 1/
I worry when people say they are "celebrating" autistic people though, because, as well meaning as I am sure many are, it kind of feels like getting a pat on the head and an "atta boy" as if I am a toddler who just did something perfectly normal but has overly proud parents. 2/
I struggle with things. I can't tell whether I am hot or cold, which you can imagine has been wonderful the last couple of days during a heatwave when your body still has the normal reaction. I can't tell if I am hungry, need the loo, or just fancy a cigarette. 3/
Read 23 tweets
Oh my god, THIS. I've been told by people that I have a high tolerance for pain. Do I?? I hate pain. But I endure it because some things are just painful and it can't be helped and everyone else manages fine. Better to endure it until it's over than to rock the boat.
But....I thought I *wasn't* autistic because I wasn't "sensitive", because I was good at enduring pain. Yeah, my eyeballs ache when I step out into a sunny day, yeah nightclubs are so awful and I can't hear or see anything, but all that's normal, right?
I don't like strong artificial scents like deodorant or perfume. I eat my food in a particular way, but that's just a quirk, and not an adjustment I developed to make food more "fun" (I "save the best for last" and eat the food I dislike most, first).
Read 10 tweets
Sorry Allistics (non Autistic people) - my timeline is not where you come to get intellectual labour about Autism. I perform enough for my marginalized intersections. Go to #AskingAutistics #ActuallyAutistic or do a Twitter search of the thing. Follow Autistics too.
I will tweet about my experience being Autistic. Will talk about how dehumanizing it is to be called "person with Autism". But it's not my job to tell you why. Enough information is on Twitter about it. There's a whole community of us here who talk about this.
@commaficionado Have anything at hand?
Read 12 tweets
For many years, powerpeople have blabbed about 'evidence-based (early) intervention for autism'.

If you don't know what they're on about, you'd think it seems sound and sensible. After all, who'd want to do something for which there's little or no evidence of success?

There's something foundational missing from a lot of these 'evidence-based interventions for autism':

A rights-based approach to autistic people.
I've had people (including #ActuallyAutistic people who studied the evidence deeply) argue with me about the neutrality of science, saying science is unbiased and doesn't favour a particular outcome, saying even undeclared conflicts of interest among the researchers don't matter.
Read 19 tweets
So, not everyone who is #ActuallyAutistic likes being on the spectrum. People like to talk about how being Autistic is just thinking differently, but it's not just that. Feeling like an outsider. Not understanding conversations. Being dense. The knowledge that you'll always be
different. I know not everyone feels this way, but I do. Autism isn't "I think differently" to everyone. To a lot of people, there's the feeling of wanting to be like everyone else. Wishing that they weren't autistic. Shedding tears over something
you'll never get rid of. You start questioning if everything you do is "autism". "Maybe I wouldn't have done that if I wasn't autistic". "Maybe I could have did this if I wasn't autistic". You think it a lot, and it makes you depressed. How, to you, you were deprived
Read 9 tweets
Ok here’s my attempt at a thread about allistic and autistic exp/understanding of “help”.

The major caveat here is: I do not speak for all autistic ppl, but generalizations will happen when trying to think through patterns, so forgive me.


The other day I was lamenting to an autistic friend (I am also autistic) about how, so often, my attempts to get very concrete support or help from people who have explicitly offered to help me end in their anger, frustration, and ultimate denial of offered support.
I find it so distressing and confusing that it makes me never want to ask. Except sometimes I HAVE to. I’m not abled. I actually can’t always do things I NEED to do by myself. It’s something that autistic burnout is forcing me to reckon with.
Read 108 tweets
Hello! I gave a long-ass interview for a #Bloomberg @business @bloombergtax article on Ernst and Young @EYTwitter's new neurodiversity initiative as a mental health expert and #actuallyautistic person and I'm glad to see that my opinion was IGNORED and TAKEN OUT OF CONTEXT! 1/
The piece: "Growing EY Initiative Promotes Neurodiversity in the Workplace"… 2/ (prepare to cringe)
I'm going to just hope that the journalist I spoke with @TzulRichard (2023 journalism school, intern?) was overridden by his editors incl @JeffMHarrington. Because he was thoughtful and listened well during the interview. But what they published was a puff piece on EY program.
Read 25 tweets
We should not only make research more accessible because it is the right thing to do, but because it provides more accurate results.

Listen to the full podcast on our website:

#AcademicChatter #DisabledInSTEM #DisabledinHigherEd @FractalEcho
Video description: Purple background with a picture of Dr. Rua Williams: a person with light skin, brown hair to their shoulders, and wears circular glasses. They wear a white floral collared shirt, floral bowtie, and blazer/jacket. White text that reads:
Dr. Rua Williams discusses how accessible data collection methods provide better research results that are more comprehensive and valid.
Read 9 tweets
Hi @cptcapt, this is an extremely complex situation that you are asking us to promote.

It is awsome that Autistic children are presenting themselves but by definition children act without awareness of context and heaviliy influenced by others.
Our original impulse was to share the account, but then we saw the bio.

Instead of saying "I'm an Autistic 5 year old" they say they are "... with Autism"

We know this might seem ... intense .. but words are important and this shows a lack of awarness of the Autistic community
We have run into these scenarios quite a bit where non-Autistics claim to have authority regarding the Autistic community regarding what children have said and it is extremely problematic.
Read 30 tweets
I have come across a new way NTs are being ableist AF. Meditation! Only this year after teaching yoga for 8 years did I discover people can “not think”

How? Because no way in my years of training and reading did I ever see meditation described as “not thinking”
I found out about the not thinking phenomenon by from #ActuallyAutistic people. Let’s look at how dominant culture co-opted meditation and made it an accessible.

Clear your mind as an instruction is bullshit and has no meaning. I was taught never to use that phrase
Clear your mind is a misinterpretation of “Yogas Chitta Vritti Nirodha” entire books have been written this phrase. I will recommend some at the end of the thread. The translation that resonates with me is “yoga is cessation of the fluctuation of the mind stuff” Screenshot from Yoga Sutras...
Read 39 tweets
-- Accidentally Open Secrets Regarding Autism --

There are facts that are known by so many Autistic people that they don't get talked about much, so people often don't realize they are a "thing" and then once they know .. they know.
Autistic people naturally gravitate to other Neurodivergent people.

When a person realizes they are Autistic, most will quickly devleop the ability to "detect" if another person is Autistic.
The VAST majority of Autistic people are glad they are Autistic and want to keep it that way.

They want accomodations, not a cure.
Read 43 tweets
Super Excited to be listening to this podcast which has the extremely awesome @neurodiversiti as the guest.

I had to pause to tweet my Autistic Joy!

Episode tile: "Autism acceptance and benefits of neurodiversity"…
Listening and pausing to tweet 7 minutes in.

Wow! @neurodiversiti DAMN!

Proud to have you as an Autism advocate!

I know We are in good hands with people like you speaking up for the neurodiverse.
@neurodiversiti, I didn’t even make it another minute and you have me, LITERALLY in tears.

So wonderful to hear your honest and powerful statements on Autism on the run up to Autistic Pride Day.
Read 6 tweets
For the first week of #Pride2022: a brief thread about why the fates of LGBTQ+ and #ActuallyAutistic people are intertwined (to say nothing of LGBTQ+ autistic people). This right here is Ole Ivar Lovaas, the father of modern-day Applied Behavioral Analysis. 1/ Ole Ivar Lovas, a smiling middle-aged white man with sandy b
Lovas ran a clinic at UCLA, where autistic children were slapped, administered shock therapy. LIFE Magazine profiled his practices in 1965, showing how one girl was taken to a "shock room" when she made little progress.…
When children behaved well, they were given food and affection. Children were initially not given regular meals and only spoonfuls of food at first.
Read 17 tweets
When you find out you're autistic later in life its... weird. My whole life I've been memorizing the things that upset people & what I'm supposed to say or do to un-upset them, the whole time being bewildered bc the way other people process things is not the way I process things
It's difficult to talk about bc I've always had to orient myself around social rules that allistics get really wrapped up in, that they seem to just intuitively understand in a way that I don't. I end up with a lot of anxiety around shit I don't actually understand or care about
Psychs told me I isolate bc of anxiety, & anxiety is certainly part of it, but I think the bulk of it is exhaustion. It's exhausting to force myself not to rock, to look at & (attempt to) listen to other people, don't repeat myself, don't flip out if noise is happening, etc
Read 30 tweets

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