When patients reject a mental health (mis)diagnosis for symptoms they know have physiological origins, it is *not* bc they are devaluing mental health.
Patients do this bc they know that it will lead to ineffective treatments & useless research. 1/5
There's a pernicious cycle: label a poorly understood illness as psychogenic ➡️ don't invest money in researching the physiological origins ➡️ claim the lack of evidence on physiological mechanism proves it's psychogenic ➡️ repeat
2/5
Bonus: if patients are not "rational" enough in their suffering as medical establishment offers them nothing ➡️ use this as further evidence that their symptoms can't have physiological origins 3/5
The solution is not for doctors to just use more *sympathy* as they give a mental health diagnosis that overrides what patients are saying about their own bodies & experiences.
This is not about stigma. It's about trusting patients on what they are experiencing. 4/5
Question: have you seen any evidence offered for the recurring myth that patients reject psych diagnoses for physiological symptoms b/c they stigmatize mental illness? (Genuine question, I'm writing about this) 5/5
To clarify: Devine, Khullar, etc. claim that patients are rejecting psychogenic explanations bc they stigmatize mental illness. They do not offer any evidence for this & I'm asking what evidence they (or others making this arg) have/think they have?
Medicine, like all of science, is political:
- which questions get asked
- which projects get funded
- how debates get framed
- who the researchers are
- context of data (what categories, what labels, which biases, what is left out)
- whose suffering is counted 1/
Science does not just progress inevitably, independent of funding and politics and framing and biases. 2/
Activists of ACT UP pushed USA govt & medical establishment to stop ignoring HIV/AIDS in the late 80s/early 90s, and to invest more in researching & addressing it. The huge progress that has happened in HIV/AIDS research & treatment would not have happened otherwise. 3/
Queensland police to trial AI tool designed to predict and prevent domestic violence incidents. This raises a number of concerns 1/ theguardian.com/australia-news… h/t @benhutchinson
The police superintendent says that they have removed raw data about ethnicity and geography as part of effort to avoid bias.
This does not prevent bias, at all. Machine learning is all about picking up latent variables. More on this topic: 2/
Corporate-funded efforts to downplay covid are using strategies straight out of the climate denial playbook, funding contrarian scientists, misleading petitions, social media bots,...
In many cases, it is literally the same billionaires & corporations funding climate change denial and covid minimization, opposing public health measures 2/
It is critical for physicians, scientists, & public health officials to realize that they are not dealing with an orthodox scientific debate, but a well-funded sophisticated science denialist campaign based on ideological & corporate interests 3/
[Faulty] assumptions in design & deploy of AI systems:
- user is an individual
- individual prioritizes personal well-being
- text & context can be separated
- the only useful knowledge is that produced through rational instrumentality... jasonedwardlewis.medium.com/from-impoveris…@jaspernotwell
"...This makes AI system engineers blind to vital aspects of human existence — such as trust, care, and community — that are fundamental to how intelligence actually operates." 2/
"The people who produced that data were not asked if it be used this way, they were not compensated for this use, & the use does not benefit them directly.
Indigenous communities have long histories with people like this. We recognize them for what they are: colonizers" 3/
One depressing aspect of the pandemic is how countries refuse to learn from other countries. Within a country, states refuse to learn from other states. Many refuse to learn from history. Many believe in exceptionalism, that they won’t face what everyone else has. 1/
I still remember first seeing the images of tent hospitals in Lombardy and realizing that this could happen everywhere. Jeremy & I did a data analysis and wrote at the time 2/
75% of people aged 16+ in UK have both doses of covid vaccine & there are currently 700 covid deaths PER WEEK in UK
Some Aus leaders want to reopen when vaccines for ages 16+ hit 70-80%. If our death rate is proportionate to UK, that would mean 266 Australians dying PER WEEK. 1/
Many in UK have already had covid, so it's likely that the AUS death rate could be higher than that 266 ppl per week
75% of ppl 16+ is only 60% of the whole population. 60% against Delta is not enough. We need to vaccinate children & we need rates ~90%. 2/
Some point out how society accepts deaths from flu. In 2019, there were 486 flu deaths in Australia (averages to 9 per week). 2017 was particularly bad with 1,255 flu deaths (avg 24 per week).
What we are facing with covid is over 10x more. These are not the same. 3/