October 8. While cancer does not discriminate, our system, including health care does.
FACT: As far as early stage breast cancer goes, White and Black women are about as likely to be diagnosed. Black people, however, die at a rate 40% higher than Whites! 1/
There are multiple reasons for this, some being that Blacks are more likely to have triple negative breast cancer, which is more aggressive; they are more likely to be diagnosed at a younger age, and are often dismissed ("you're too young to have cancer"); 2/
and - and this is absolutely, positively NOT acceptable in any way, shape, or form - are often not offered the same state of the art treatments or clinical trials as Whites. This is often called "implicit bias" but I'm going to be blunt - it's racism. 3/
ACTION: Support initiatives to address these disparities and inequities. Please make a donation to a new organization headed by one of the most dynamic, motivated, innovative people I know, Jamil Kali Rivers, who is living with MBC. Here's the link: thechrysalisinitiative.org/donate/
4/
IN MEMORIUM: Chawnte' Randall was a powerful voice for the MBC community - board member of METAvivor Research and Support Inc., co-host of Our MBC Life, member of TheRight Dose initiative, to name a few. As someone who worked for CMS, she was always willing to answer questions
about Medicare and Medicaid for those trying to navigate those payers.
Chawnte' was a Veteran, a mom to an only child daughter, the same age as my daughter, and she was so proud of her. Thank you, Chawnte', for your service to our country and to our community. Rest in Power. fin
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October 7. My maternal grandmother had (probable) pancreatic cancer. My mother and two of her sisters had breast cancer, with my mom having 2 local recurrences, and then lung and bone mets diagnosed right before she died earlier this year from Covid. 1/
One of my aunts also had ovarian cancer. Two of my generation of maternal first cousins have had early stage breast cancer and one of their daughters, at age 35, was diagnosed with breast cancer. I had early stage breast cancer in my mid/late 40s ...2/
(depending on if you count when it was missed or when it was found) and then MBC at age 53.
Must be genetic, right?? Nope - neither myself, my cousin M. or her daughter K. have any known mutation. 3/
October 6. "Early detection saves lives". "Get your mammogram to prevent cancer". We hear phrases like this every October and they are just plain wrong.
FACT: Mammograms don't prevent cancer they detect cancer that is already there!!! 1/
And sometimes they don't even do that: breast density can obscure cancer; lobular and inflammatory breast cancers are often missed on mammos; radiologists reading a mammogram can miss a cancer. 2/
And, as I mentioned in an earlier post, sometimes cancer metastasizes when it is too small to even be seen on a mammo (so there goes that "early detection saves lives" thing). 3/
@usnehal Dr. Nehal I am holding space for you. My 94-year-old mother lives in VA and was admitted with pneumonia almost 2 weeks ago (COVID-). Long h/o supposed early stage BC but bone/lung mets dx on chest CT. Went to rehab, doing ok, took turn for worse. Readmitted.
@usnehal Now COVID+. ER doc called to confirm my mom’s wishes to be DNR/DNI. She’s 94, with #metastatic cancer. Yes, DNR/DNI, comfort measures. Now on hospice service with death imminent. I’m in CA, with metastatic cancer myself, only 1st shot rec’d. Nurses and docs have called me daily
@usnehal Nurses have facilitated FaceTimes, even using their personal phones, even though my mom is minimally responsive. I cry tears of sadness & guilt that I’m not there, and tears of gratitude for the compassion with which she - and I - are treated. Your mom and you deserve the same.