Hello everyone! John here. Most of today's tweets have been prescheduled, as I planned in advance not to be online much while my body begins recovery from brain surgery.
I wanted to check in with a real-time update on my progress:
Follow-up visits today with both neurosurgeon and ENT who performed my procedure to assess my progress.
Hoping to get clarity on the wildly fluctuating hormone and BP levels, and the water/sodium balances which have been the most challenging so far to get a handle on.
Actual surgery site pain-free and invisible from the outside (as they broke through my sinus cavity and removed the tumor in sections through my nasal passages... amazing). No issues aside from steady but manageable sinus pressure, lack of sense of smell, and profound congestion.
I'm not allowed to blow my nose, sneeze, breathe heavily through the nose, bend over forward, or lift anything over 5 pounds, or risk busting open the wounds (which happened once during the hospital stay and was a horror movie scene :)
So the doctor's priorities right now are getting my pituitary to function normally after the trauma of surgery and to help it recalibrate without the tumor inhibiting it. They need to raise my sodium to avoid stroke threat, and to decrease BP.
My priorities are to listen to them, to rest, and to be patient and help my body heal. These are all challenges for someone used to being active, but I know recovery needs to be long and slow in order to be complete.
My family and I so appreciate you all for your kindness and support. It is a huge encouragement to be shown this much love and we're grateful.
People continue to ask what they can do for us. We're fortunate to have a wonderful local community here making or donating meals for us for the next three weeks, and we have help with the daily routine of life, which will be very different for the rest of the year.
It may sound crass, but buying/supporting the new book is one of the most concrete ways you can help our family now. My wife and I are both self-employed and this is our life's work. The blog, social media, Etsy shop, are a mom and pop enterprise (and mom and pop are maxed out!)
You can come alongside us while we attend to my healing and focus on our kids, by boosting us in these days:
I'll update again this evening as we hope to have lots of news.
In the meantime, words cannot express our gratitude for you. You are a virtual community showing us very real love, and that's something we will never forget.
Have a great Monday, good people.
Love,
John
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Feeling well enough to give you a brief update while waiting on my wife to arrive:
Tumor removal went very well and I avoided cranial fluid leak which would have made recovery much longer and more involved.
During surgery my BP did drop significantly so they inserted an arterial line to monitor continually and treated to bring up. Now trying to get it down to normal levels. Weaning my off those meds.
Have had some significant hand swelling they will try to get to the bottom of. That and BP levels will likely keep me here tonight, but my surgery site itself is great and my head is almost pain-free with limited meds!
We're less than 24 hours until my surgery and I'm about running out of time to answer messages and return calls and do a bunch of stuff that just ain't gonna get done at this point! I'm good with that. We've done a lot this week.
I'll be devoting most of the evening to getting in one last workout (as it will be a few weeks before I can) having a great meal (in case my sense of smell goes) relaxing, and being with my family.
I've said it a lot this week and will say it again when I get home, but thank you. Your kind words, prayers, encouragement, gifts, contributions, and support have been overwhelming.
On September 11th I was working as an art director in Philadelphia.
I was walking through our artist studio when I heard Howard Stern on the radio say something casually about reports of a plane crash at the World Trade Center.
For a few seconds everyone on the show was speaking with almost glib curiosity, imagining it was a small private plane and speculating on what might have happened. Very quickly it became clear that this was something different.
I can remember standing in that spot for a long time, unable to move and barely breathing as they all gathered information in real-time. And I started to hear something in their voices I never heard before: genuine fear.
The surgery to remove the benign tumor at the base of my brain is set for Friday October 1st.
Being only 3 weeks away and 3 days after my upcoming book launch, life is going to get crazy here but I'm feeling good and looking forward to beginning recovery!
We have a great team of doctors, a good plan, and a wonderful group of family, friends, and this virtual community around us—and I am feeling grateful.
People have been asking how they can support us from a distance. Honestly, in addition to positive thoughts, kind words/prayers, supporting the book would be huge, as I expected to be spend October promoting it—and that ain't gonna happen!😜
Thank you! johnpavlovitz.com/jerk