My new essay: In topics ranging from covid-19 to HIV research to the long history of wrongly assuming women’s illnesses are psychosomatic, we have seen again and again that medicine, like all science, is political.
We are not prepared for the surge in disability due to #LongCovid. The physiological damage covid causes can include cognitive dysfunction, GI immune system damage, immune dysfunction, increased risk of kidney outcomes, dysfunction in T cell memory generation, pancreas damage, 2/
We are seeing concerted efforts to downplay the long-term health effects of covid using strategies straight out of the climate change denial playbook... Many have a significant financial interest in distorting the science around long term effects of covid. 3/
In thinking of science as perfectly objective, many scientists miss their own blindspots and are vulnerable to bad-faith attacks...“We spent a long time thinking we were engaged in an argument about data & reason, but now we realize it’s a fight over money & power" 4/
There is not a clean break from the history of racism & sexism in medicine where bias was eliminated and all unknowns were solved. 5/
Medical data are filtered through the opinions of doctors, decisions of what tests to order, what types of scans to take, what guidelines recommend, what tech currently exists. And the tech that exists depends on research & funding decisions stretching back decades. 6/
Research shows that receiving a psychological misdiagnosis lengthens the time it takes to get the correct diagnosis, since many doctors will stop looking for physiological explanations. This dynamic holds true at the disease level as well. 7/
Globally, we are at a pivotal time in determining how societies & governments will deal with the influx of newly disabled people due to long covid. Narratives that take hold early often have disproportionate staying power. 8/
Please read the full article here (includes more context about the GBD, history of ACT UP, treatment of ME/CFS, and other relevant context) 9/
Friends with no previous interest in AI ethics have been asking me about it recently, so I want to share several underlying concepts about AI & power that are important to understand. 🧵 1/
AI and Power: The Ethical Challenges of Automation, Centralization, & Scale
In Australia, automation was used to scale putting poor people into debt (often illegally). The govt went from creating 20,000 new debts PER YEAR to creating 20,000 new debts PER WEEK, many of them bogus, but hard for people to appeal. 3/
Rheumatoid arthritis, Crohn's disease, Multiple sclerosis, Type 1 Diabetes, Lupus, Hashimoto's, & Psoriasis impact a range of body systems, but all are autoimmune diseases.
Developing a lifelong autoimmune disease is often first triggered by an infection. 2/
Medicine is very siloed, and autoimmune diseases have often been treated in separate silos, based on which body system they impact, limiting our broader understanding of common threads. 3/
Even common viruses can have long-reaching, surprising, & devastating consequences. Fortunately, there are simple steps we can take to reduce transmission. 1/
The idea that a common childhood virus can quietly hang out in your nervous system, reactivate decades later to cause shingles, and then months AFTER shingles blisters clear up cause blood clots & strokes is mind-boggling to me 2/
VZV (chickenpox virus) is not just linked to strokes, but also linked to multiple sclerosis or vascular dementia (my note: possibly through reactivating other viruses).
After 12 years working as a data scientist & AI researcher, I have gone back to school for a Masters in Immunology. When I become fascinated by a topic, I want to learn as much as I can. 1/
My ultimate goal is to apply my machine learning & data ethics skills to immunology, but I want to make sure I fully understand the underlying domain & relevant context first. (With ML, it’s important to not just be a hammer searching for a nail). 2/
Immunology is a complex and vast field, full of open questions and not-yet-fully-understood phenomena.
Viral infections have been significantly associated with many neurodegenerative diseases, including Alzheimer’s. 3/ cell.com/neuron/fulltex…
I made a mastodon account a few weeks ago: @math_rachel@mastodon.social (in case twitter falls apart)
I haven't used it yet and have mostly been taking a social media break prior to this. 1/
I used to post a lot on twitter (about machine learning, working in tech, algorithmic harms, & later covid). I loved this place and I learned a lot from others here. Thank you to those I met & learned from. (I plan to stick around, but who knows what will happen.) 2/
Being high-risk during an ongoing pandemic, not being able to safely access healthcare, seeing how many people I used to respect are going along with the erasure & destruction of disabled people-- all this has shattered my previous worldview. 3/
This is a thorough, incredibly well-researched explanation of the Qld government's unscientific & unethical pursuit of a "wall of immunity", which was doomed to failure before it had even begun. by @ColinKinner
Please watch the embedded video of Chief Health Office Dr. Gerrard. Note that when he repeatedly says that it is inevitable & necessary for us to all catch covid, he is speaking as someone with significant political power. 2/
Messaging from @qldhealth continues to focus on social distancing & hand-washing, even now in 2022. It has been known since 2020 that #COVIDisAirborne (we need high-quality masks & ventilation; 1.5m != safety), yet public health officials have still not updated their approach 3/