Telling someone with chronic illness to work on their stress to help them heal gives me anxiety. Yes, less stress can help, but anxiety is not the cause it is the symptom. Those living in chronic illness & pain don't need the added stress of unsolicited advice #spoonie
You know who else told me my anxiety was the cause of my illnesses? My doctors since I was 18, 20 years now, have sent me away claiming my mental health was the cause. Turns out I have a genetic condition, Elhers Danlos Syndrome, and it was never just in my head. #spoonie
I told my Rheumatologist I thought I had EDS and she said, "who told you that?" Pinched the skin on my hand said, "you don't have that", & proceeds to test me for lupus. (FYI, that's not how you test for EDS) #spoonie
At 18 I started having fainting spells my doctor told me I needed to eat more. He did no tests. He just looked at me said I need to eat more and left. I kept being faint. The same year I was told I had manic depression. Who would be depressed when chronically ill and disbelieved.
I went to the ER after a fall and when the doctor came in I was told they can't preserve pain killers. I was not given a physical exam. I left with an Advil prescription, a medicine I can't take because of a history of Ulcerative Colitis.
I went to my PCP the next day & told them what happened. I was sobbing because I was in pain. I am Autistic and was stimming with my hands because I was overwhelmed (a perfectly normal autistic presentation) I was not given a physical exam and Instead behavior health was called
I had to convince them I was indeed mentally stable and capable, all the while I was in great pain and physically injured. I was not given a physical exam. 6 months later I paid out of pocket for a MRI and I had 2 p. shoulder tendon tears, torn hip ball socket cartilage, and more
Another time after lyme treatment I told my doctor I still felt exactly as I did before we started and he told me I needed to see a psychiatrist. All the while 20 years of doctors not believing me and I have EDS, POTS, MCAS, & now medical PTSD. It's disgraceful it took this long
Anxiety is not the cause of my illnesseses, anxiety is a result of them & a lack of compassion & support. Living with daily pain & exhaustion would make anyone anxious. So, please stop giving chronically ill people unsolicited advice especially in relation to our mental health.
*prescribe

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More from @autieangel

23 Oct
cPTSD can cause me to do things I regret later, one being getting triggered & blocking friends/people. It's happened enough times that I have learned to apologize, if needed, & to let them know why. It is so hard when you've been taught that people aren't safe to unlearn that.
This is due to my abuse, but also the way peers & society at large reject Autistic traits even when we mask for the benefit of others. Forcing us to assimilate to neurotypical standards only teaches us that others aren't safe and that we must closet who we are to remain safe.
I can recognize abuse now due to being raised by an abusive parent, but I can also recognize the same pattern of abuse in Autistic "treatments." Abusers wear down who you are for their benefit. They teach you that you must act how they see fit or else. Abusers also use rewards.
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