Good News! Big news!
Simon's Law, having passed in nine states up to present, has just been dropped in the House Hopper!

This afternoon @RepLaTurner introduced the #SimonCrosierAct requiring parental consent before a DNR may be placed in a minor's medical treatment plan. Image
Scott and Sheryl Crosier could not be more thrilled and humbled with this state to state journey now gaining a foothold on the national stage.

The Crosiers are grateful to everyone from @BillKiddforMO to Congressman Jake Laturner and everyone in between at Simon's Law & Simon's
Kids, fighting for equal rights to medical care for all our children.

Could there be a more worthwhile vocation than using one's gifts and talents to help save the lives of these little ones?

Little Simon Crosier still being honored, still very loved, and still making a
difference in this world, watching us all from the next.

#SimonsLifeMattered ❤️

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More from @Simons_Law

23 Oct
With fair care, appropriate interventions, and the right treatment, amazing things can happen!

"Look at me now PCH! I guess I wasn't at the end of my rope after all, huh? I really wish I could show you guys how tough I am, and how well I'm doing now. How's this for
'QuAlItY oF LifE?' I don't know about you, but my life is filled with so much fun, and people that love me. I'm nearly walking all by my self. I'm starting to like food. And, guess what? I'm off ventilator almost all day!

Thank you to Boston for believing in me and valuing
my life enough to save it. 365 days ago I was discharged from the hospital, after being inpatient for 5 months, at 3 different hospitals, in 3 different states, including one 16-hour heart and airway surgery. Because of Boston Children’s, I am able to breathe so much better.
Read 7 tweets
22 Oct
🧵 🪡 time again: Look at this sweet girl!!!

Read more for mom’s story of what’s been a truly miraculous life: Image
Hello Everyone-

I wrote this to the geneticist who gave our family no hope, in 2019, for our child Sajjona.

I find it important to share the response w/the world. Name is not disclosed…pictures for cuteness

To all trisomy families or families
who were told their child was incompatible with life or a vegetable- this is what our advocating accomplishes—

#change!!!!

Please read the response to my letter from unnamed doctor & you’ll see why we need to keep writing letters when our children were labeled & given no hope. Image
Read 12 tweets

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