@PDASociety As the charity is at present failing to explain how viewing PDA as a "Profile of ASD" conforms to the DSM-5 autism & NICE autism guidelines, I am struggling to see how how this is helping the charity to help others. Some clarification is needed.
@PDASociety At present this a literal example of how "PDA Profile of ASD" is being used to control various autism stakeholders.

Should be noted charity has on its website PDA is part of the autism spectrum.
@PDASociety Without the requested clarification, it can be viewed as misleading the public on PDA. Especially when independent parties have reviewed the evidence, stated no evidence to suggest what PDA is & equally respected divergent opinion PDA.
@PDASociety Hence reasons, why I have been seeking clarification on various points.
@PDASociety This example, also provides reasons why I am struggling to view it is credible there was no agenda to have it recognised that PDA is a "Profile of ASD". If PDA Development Group provided resources for PDA Society (which they did)...
@PDASociety ,,, , charity is seeking to raise awareness of PDA, along its viewpoint PDA is part of the autism spectrum. Then it is reasonable to assume said resources would have contributed to "PDA Profile of ASD" being a "culture-bound concept"...
@PDASociety ... Especially when said resources viewed PDA as a "Profile of ASD". e.g. this
pdasociety.org.uk/resources/good…
@PDASociety ... It is reasonable to view that PDA Develpment Group's members were aware they were contributing to "PDA Profile of ASD" being a "culture-bound concept"...
@PDASociety ... If they were aware of such concequences of their actions, likely was an agenda to make "PDA a Profile of ASD", which fits broader information on the topic, that there was/ is an agenda to make "PDA Profile of ASD"...
@PDASociety ... I am at present trying to empathise with the @PDASociety & others, to better understand their position, by asking various related questions, like how does "PDA Profile of ASD" conform to DSM-5 autism & NICE autism guidelines.
@PDASociety ... Perhaps, they & others genuinely believe there was/ is no agenda to make "PDA Profile of ASD" recognised?

One can only try to engage with @PDASociety & their perspective to understand their rationale.
@PDASociety Link to recent systematic review on PDA too.
journals.sagepub.com/doi/full/10.11…
@PDASociety I am keenly awaiting the response to questions to clarify various pertinent points, from the charity & others. For one, I am keen to understand how PDA as an anxiety-based conditions conforms to DSM-5 autism & NICE autism guidelines?
@PDASociety No, I am considering the inclusion of “Unusually negative response to the requests of others (demand avoidant behaviour).” On pages 33, 36 and 40" in NICE autism guidelines as an acceptable answer due to many reasons.
@PDASociety The inclusion of that line is problematic for many reasons discussed below.
@PDASociety Reasons include that the line is generic, covering features which are caused by trauma. The line also covers features associated with Oppositional Defiant Disorder. This is represented by requests to expand definitions of PDA in NICE guidelines.
@PDASociety So there is a need for clarification by @PDASociety & others on this point.
@PDASociety On that note I will end.

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More from @Richard_Autism

18 Nov
For the record these are questions I am awaiting a response from Development Group members from.
It is widely acknowledged in the PDA literature that it is not in the main two diagnosed manuals. I have email confirmation that It PDA was excluded from the DSM-5, by the Neurodevelopmental Disorders Workgroup...
... It is widely recognised, including in the DSM-5 anxiety is not a feature of autism. It is argued PDA’s demand-avoidance is driven by anxiety, and it is developed and maintained in a negative reinforcement cycle...
Read 30 tweets
17 Nov
This is just a short thread containing all my present images on PDA (off the top of my head. Trying to group them in some sort of relevance.
So 4 circle Venn diagram is my version of Soppitt (2021, p299). The 5 circle is my own one based on current research results.
Read 5 tweets
16 Nov
Question for autistics: How many of you would have noticed the social politics behind how Boris addressed the Speaker in the letter & signed it off?

“Dear Mr Speaker” + "Yours ever, Boris"
Curious, if many of us would bother with/ care about such non-autistic social intrigue over how you sign a letter/ email communications.
For the record, the next two tweets discuss the possible implications of how Boris addressed the Speaker of House of Commons, & how Boris signed the letter.
Read 4 tweets
16 Nov
I would suggest the same thing to those thinking an anxiety based disorder like PDA (supposedly is) is a Profile of ASD.
PDA theory suggests more distressed a person is, more likely they are the escalate through these features.
The reason is, that these social avoidance features are anxiety based RRBIs, which are meant to be developed & maintained through a generic negative reinforcement cycle.
Read 24 tweets
15 Nov
Is there any professors/ senior academics in autism studies based in the UK who are sympathetic to autistic perspectives & agenda?
Tangent, off the top of my head many are based in non-Russell Group unis. I admit this is based off the top of my head & could be an unrepresentative sample.
Said sympathetic academics in UK autism studies (some involvement with PARC is a good indicator). Off the top of my head:
@martinbeecher @Palaceedd Dani Ropar, @SheffieldLuke @mitziwaltz @Andylowarousal @Allison66746425
Please add more.
Read 5 tweets
14 Nov
So reflecting upon a recent claim The PDA Development Group had no agenda to make PDA as an ASD. So assuming many contradictory evidence which suggests there is such agenda is mistaken...
... Was organised enough to have a chair. See screenshot of page 12.

Link here:
pdaresource.com/files/pda-awar…
... Produced resources like this:
pdasociety.org.uk/wp-content/upl…
Read 23 tweets

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