Physicians, the unknown, and Long COVID

One of the reasons COVID has affected physicians deeply (aside from the soul shattering moral injury, repeated trauma, and exhaustion-- since those aren't enough)- is because we are learning an entire pathogen and illness from scratch.
Only now are we starting to understand some of the inflammatory cascade that COVID causes and trying to target our therapies towards lessening this effect.
What we know even less about is long COVID. In early 2020, we thought we were going to see an incredible amount of pulmonary sequelae, lingering lung disease.
And while we do see this, overwhelmingly we are seeing a neurocognitive effect, severe fatigue, neuroinflammation presenting with a variety of motor and sensory symptoms.
We are also seeing depression, anxiety, PTSD from the infection itself, from the longevity of long haul COVID, the progressiveness of it, and due to the lack of solid treatment just yet. Because we are still learning, trialing, collecting data.
As physicians, we are not used to the unknown. We like control, order, algorithms, guidelines, pathways (oh do we love pathways)... And COVID has challenged this.
I have begun to dedicate part of my outpatient practice to Long COVID, and I have found myself saying "You know, I don't know, but we are going to work together on this" more times than I care to admit.
However, maybe not all that surprising (since humans are generally good), I'm always met with "Thank you for being honest. And for validating me. Even if you don't have the answer yet."
If there is anything I hope my physician colleagues take from this pandemic, it is that we don't know everything--- but we can continue to learn.
And having the humility to say "I don't know" or "I was wrong" does not make you less of a physician. It makes you a compassionate human who, like every other human on this planet, is learning to live with a new disease, a global shift that none of us ever prepared for.
And to the long COVID patients out there... You are seen, heard, and cared for.
#COVID19AB

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More from @NeejaB

30 Nov
Long (but necessary) Thread on Hospitalizations: GIM (Internal Medicine) and ICU, and what it means to be "COVID Recovered"
We have gotten used to the slew of numbers thrown at us daily. Active cases. Deaths. ICU and hospitalizations. And over the last few weeks, we have seen a very slow decline in these numbers.
But I caution us all not to get excited or comfortable with these numbers. They do not tell the whole story.
Read 16 tweets
20 Nov
612. The number of days since AB first declared Public Health State of Emergency due to COVID. On almost all of those days, I've woken up, checked the census of internal medicine and COVID patients in my hospital.
95 days. Roughly the number of days we have been in the 4th wave in AB. A wave that may have peaked, but now has plateaued into what we are calling at the hospital "the new normal."
150%. The amount each of my internal med docs have worked over the last 21 months, above their usual contractual obligations, in order to staff the COVID and internal med surge teams. (Should out to @BisonGIM - #TeamGIM)
Read 4 tweets
7 Nov
State of affairs: Healthcare edition.

With every wave, there is the peak and then the steady decline, where for a moment or two, it feels like the pressure cooker has settled. Where we feel like maybe things are over and the worst is behind us. /1
The reality is that with each wave, the cumulative healthcare effects from March 2020 are more dire, with this current reality the worst we have faced as a province./2
COVID: cases have come down, and hospitalizations are down. All true. BUT any internal medicine service can tell you that our ward COVID patient numbers have plateued, unlike any other wave. Previously, we would see a fast decline as soon we saw cases go down./3
Read 13 tweets
30 Sep
Trigger warning: COVID death.

Hi Jane. This is Dr. Bakshi calling from Edmonton. I am not sure if you're aware, but your mom Anne was admitted to the COVID ward about 2 hours ago. I'm calling because she is not doing well, and will likely not survive the day."
...deafening silence....followed by a chilling shriek.... Tears... Gasping for air trying to form words... Phone clicks. 5 minutes pass, and I call again.

"Hi, Jane. I know that was a lot to take in."
Through her tears, Jane responds: Yes. I'm so sorry for hanging up on you. I was shocked. I didn't even know she wasn't well, I spoke to my mom two days ago. I am in BC. I won't make it in time, will I?

"I don't think so, Jane. I am so sorry.... Jane, tell me about your mom."
Read 16 tweets
12 Jul
Thread on healthcare system collapse. Warning: it's long.
Just finished handover for the acute inpatient GIM service I take over tomorrow, and several observations that may help explain further why this crisis is not like anything we have seen before, and why cutting nursing renumeration makes literally zero sense.
An average GIM service will have a mix of patients awaiting long term care/subacute care with a number of medically acute patients. For many years, the flow out of the hospital has relied on numerous factors, including availability of community and alternate level of care spaces.
Read 12 tweets
2 May
As I reflect on AB's cases, I can't help but get angry at the privilege and selfishness of so many.

I am talking first hand w/ relatives in India, where oxygen is being rationed, saturations of 75% are all of a sudden "acceptable."/1
Families are pooling funds together to purchase their own high flow machines. I am talking to the doctors, walking them through COVID management as many of them are not at all critical care or hospital trained.

People are dying in the waiting area, in the entry ways, at home/2
Our per capita case load in AB is higher than that of India. But we are fortunate because we have resources. Privilege of being able to social distance and isolate. To attempt to save our healthcare system from triage and crumble./3
Read 5 tweets

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