Thread by @ahandvanish

This week marks the 1 year anniversary of @patientled's 2nd #LongCovid paper (now peer-reviewed & published: thelancet.com/journals/eclin…).

The good news: it got better information to many new researchers, including the accurate symptoms, neurological severity, & testing issues.
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https://twitter.com/ahandvanish/status/1343293596007620609

It has over 200k views & several hundred citations, & informed policy in many countries & orgs, including the US, UK, Belgium, Spain, the WHO, CDC, & others.

The bad news:

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Most of this info is still not common knowledge to the general public & new patients. So many have no knowledge that cognitive dysfunction, memory issues, neurological issues, post-exertional malaise, dysautonomia (incl temperature & heart issues), & more are SO COMMON.

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#LongCovid patients have an average of 56 symptoms (not uncommon for a multi-systemic illness), not just 1-2 like is often talked about in the news or bad studies.

Some of these have names & can be at least partially treated (occipital neuralgia, POTS, MCAS, reactivations)

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It's been hard to watch, especially knowing that the earlier people get care, the more likely they are to recover.

So today in anticipation of the biggest wave of #LongCovid to date, I will be retweeting this thread of year-old tweets.

https://twitter.com/ahandvanish/status/1343293596007620609

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If someone in your life has new heart issues/tachycardia, vertigo, cognitive dysfunction, memory loss, extreme exhaustion, exercise & alcohol intolerance, new allergies, reversed sleep schedule, migraines, nonstop fevers, tremors, etc after COVID, they're not alone. #LongCovid 6/

Please help them get help. A good first step is joining @itsbodypolitic, which has a massive number of resources & competent provider recommendations. wearebodypolitic.com/covid19

And share this info.

In the next 2 months, this is likely to affect at least some of you. #LongCovid
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