1.
This is my Holiday gift; I’m telling my Long Covid story so maybe you won’t ever have one.

Long Covid is like stopping on a road trip. You get snacks and head back to your car. Except your car isn’t there anymore. There’s a different one in your spot but it’s the only one.
2.
You look around because maybe there’s someone who knows something but it's dark & empty as far as you can see. Who would you ask anyway? Miles from home, there’s nothing but you and this car. You get in; what else is there?
3.
But the dashboard has controls you’ve never seen before. You’re not sure how anything works. The windshield wipers come on as a bright sun lifts overhead. It gets dark but there are no headlights; sparks shoot from the front of the car. That’s all the light you get.
4.
The glove compartment opens and shuts for no reason. You squint to see. Steer to the left but the car goes right. Sometimes it hovers just above the ground. You want to be home. This trip is so tiring; the newness, this strangeness is wearing you out because it changes.
5.
Just when you think you’ve figured out the brakes, they aren’t there anymore. You’ll have to find a new way to stop because suddenly, this strange, anomalous car is all you have. It’s your new body. You have Long Covid.
6.
At home your family tells you use too much salt but you can’t taste it. You hate the smell of canned tuna but your husband is making tuna salad and you don’t smell it. You tell yourself this is a saving’s grace.
7.
You wander around the house looking for the source of the smoke you smell but there’s nothing. No one else smells it. Days later, it smells like cigars. Your ears ring constantly and it’s okay but at night it seems so loud.
8.
When you get tired, the ground starts moving and you wonder how to put one foot in front of the other. You want to type something but you can’t work your fingers at the keyboard. You have something to say but it’s as if your thoughts are behind a glass covered with fog.
9.
You’re always tired. On rare days, you feel almost okay & you lull in that fine space. Now, you can get something done! But there’s always a price. I washed the windows. The sunlight pours into the kitchen. The brightness is everywhere but for a week after I’m so tired again.
10.
You don’t tell anyone you have Long Covid because you don’t want it to be real. The garden you planted, the one strangers would tell you was beautiful, is filled with dead flowers. Your world is getting further and further away.
11.
At night the stars splay out undaunted by the darkness around them. They think they will shine forever; that they are invincible. Even then it was a fantasy, but once you felt that way too.

End.

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More from @Loretta_Torrago

11 Dec
If you want to know why it's worth protecting kids from Covid, here's your answer. 🧵
The answer to “Why protect kids?” has to do with the risks of becoming infected. But some people, like @DLeonhardt, hide the risks of pediatric infection in adverse outcomes per 100K.
This is like building a haystack around a needle. The risk of poor outcomes all but disappears because it is buried under a preponderance of uninfected people.
Read 7 tweets
11 Dec
I want to explain to you, @drlucymcbride, “what the heck happened”; the racist attacks & the Town Hall’s cancellation.
I want to explain in case you really don’t know.
I want to explain because we all fail.
I want to explain because the people you hurt deserve your apology. 🧵
I want to explain there is no “politely asking to join a panel” at the last minute; the event you intruded yourself on was months in the making and represented the work of many hands.
Do you see how affixing the word “politely” to “asking” doesn’t change that fact?
I want to explain that when a person like Dr. Salas-Ramirez is singled out for a “fight”, it’s not okay to respond as if you want to join that.
Do you see how your response helped draw battle lines?
Read 11 tweets
7 Dec
We may have "opened the schools" but we still haven't made them accessible.
Yesterday my medically vulnerable son told me:
"Either I ruin my life avoiding Covid or Covid ruins my life. Either way I am suffering."
It is not fine. 🧵
theatlantic.com/ideas/archive/…
If there is “no widespread crisis” in the classrooms, it’s because there is no shared crisis. Covid has been framed as a problem for those with “pre-existing conditions.” Image
The result is that, across the US, but in isolation from each other, & out of view of the able-bodied, momentous conversations are taking place inside homes, over dinner & at the kitchen table.
Read 26 tweets
11 Nov
This Long Covid study's reliance on serology derails its claim to have a control goup. What's more, it treats beliefs as *inventors of reality* while overlooking that typically beliefs are *reflections of* reality.
Laypeople call this "gaslighting".🧵
jamanetwork.com/journals/jamai…
1. An Out of Control Control Group

In this study, participants are given serology tests.
Participants are notified of the results and asked if they believe they had Covid, a question that just as well could be phrased as: Do you believe the test results?
Read 25 tweets
30 Oct
Having built a haystack around school opening data, @ProfEmilyOster challenges readers to find the difference remote or in-person makes to community case rates. You can if you search, but first let's look at the haystack in which the difference is buried🧵 nature.com/articles/s4159…
The authors’ describe the study:
“The aim of this national, retrospective cohort study was to evaluate the impact of school mode and opening to in-person education on subsequent changes in community incidence of SARS-CoV-2.”
The school modes the authors consider are: traditional (in-person), virtual and hybrid. The authors conclude that learning modes make no statistically significant difference to incidence of Covid in a community.
Read 42 tweets
16 Oct
It’s déjà vu all over again as @TracyBethHoeg does the same dumpster dive for Ontario’s “Adverse Events Following Immunization” (AEFI) reporting system that she did for VAERS. Naturally, there are problems. 🧵
As a brief reminder, Hoeg used the raw data of VAERS, despite its numerous disclaimers against doing so, allegedly to extract cases of myocarditis case investigators might have missed. It doesn’t go well.
sciencebasedmedicine.org/peer-review-of…
Turning her sights on Ontario, Hoeg doubles down on the mistake; this time not even doing the slightest investigation into Ontario’s AEFI reports (and by “slightest investigation” I mean reading the report) but instead using its raw, unadjudicated data to establish case rates.
Read 15 tweets

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