🗣Prof.Danny Altmann continued:
“One of the things that’s happened since we’ve last met, NIHR have put quite a lot of money into different studies to look at underlying mechanisms and better treatments.” 26/
#APPGCoronavirus #LongCovid
“We certainly are networked into an enormous number of studies nationally and internationally, which I hope has got to be a good thing. But also I know that many sufferers get very cross with us because it feels like when they set up these studies, they suddenly start.. 27/
“..moving at a glacial speed as they get all the infrastructure in place and all the contracts in place and the staff employed. I promise you it is moving along, big stuff will happen in the next 6-12months.” /28
“To sum up, what do I think about all this that we’re doing, we already have a minimal estimate of 1.3m in the country with Long Covid and as we discussed before, we don’t know the extent that we’re adding further in to this total through the Delta and Omicron infections” /29
“Especially in our schools where Omicron is rampant and we don’t have sufficient litigation or sufficiently good vaccine rollout and update. Many of the cases we’re talking about aren’t just the need for rehab, it’s full blown medicine with specialist clinical investigation” 30/
“And specialist treatments and we haven’t thought sufficiently about where the staff, expertise, training and guidelines are going to come from to do that. My last point perhaps is we have a very large group who required a disabling condition through occupational exposure..” 31/
“Especially healthcare workers and teachers and are now unable to return to the same jobs. They really, really need our consideration, our protection and our legal support. It’s slightly mind boggling for me that in the USA, they already have legal legislation for.. 32/
“Long Covid as a disability, under the disabilities act and yet neither in the EU or the UK do we have that. That seems very surprising to me. I hope I’ve flagged up some additional points.” /END
twitter.com/i/broadcasts/1…

• • •

Missing some Tweet in this thread? You can try to force a refresh
 

Keep Current with APPG on Coronavirus

APPG on Coronavirus Profile picture

Stay in touch and get notified when new unrolls are available from this author!

Read all threads

This Thread may be Removed Anytime!

PDF

Twitter may remove this content at anytime! Save it as PDF for later use!

Try unrolling a thread yourself!

how to unroll video
  1. Follow @ThreadReaderApp to mention us!

  2. From a Twitter thread mention us with a keyword "unroll"
@threadreaderapp unroll

Practice here first or read more on our help page!

More from @AppgCoronavirus

Jan 18
🗣Dr.Claire Steves continued:
“Looking in the national core studies, from cohort studies across the UK we’ve looked at 10 different longitudinal studies. Our best estimates are that about 5% of middle aged people are experiencing long term.. 27/
#APPGCoronavirus #LongCovid
“..symptoms that are lasting about 12 weeks that are affecting their ability to function as normal. It’s less in younger populations, about 1.2% of 20 year olds. Overall that leads to approximately about 3% of the population that have had coronavirus, have had symptoms.. 28/
“..that affect their life for more than 12 months. I think personally that’s probably about where I’d sit the best estimate. But these things are difficult to really determine. So here’s our projection, while I’m saying it may be slightly less than what ONS said.. 29/
Read 18 tweets
Jan 18
🗣 Dr. Claire Steves:
“While I’m doing epidemiological research, I’m also a clinician that sees people with Long Covid as well. I’m sitting in my clinic today. I’m a geriatrician which means that I work in a memory clinic, that’s why I.. 1/
#APPGCoronavirus #LongCovid
“..see some patients that are referred through to me from Long Covid clinics but my role today in talking to you is I’m Cohorts lead for the CONVALESCENCE study which is one of the national core studies. Elements of it are looking at Long Covid but I’m also PI on the ZOE.. 2/
“..study on Long Covid so I’ll tell you about a bit of the research from there. You guys asked me just last Thursday to answer 3 questions so that’s what I’m going to focus on today. The first one is ONS data a reliable estimate of the no of people living with Long Covid.. 3/
Read 25 tweets
Jan 18
🗣 Professor Brendan Delaney: There are staggering numbers. The recent ONS survey shows that over 500,000 people have had Long Covid for over 12 months.
🗣Professor Brendan Delaney: “The best way of thinking about this right now is…we have a lot of symptoms that wax and wane and come back when people think they’re better... there are lots of overlaps between when you get one symptom and another symptom."
🗣Professor Brendan Delaney: “GPs are hugely variable, I say as a GP. I’m afraid many of my colleagues are very reluctant to prescribe things ‘off licence’ for treatments of POTS and MCAS and stuff.
Read 6 tweets
Jan 18
🗣Prof. Danny Altmann:
“Every word that Colin, Ravi & Rebecca said resonates so strongly, that all I can do really is put some meat on the bones and add to it. An overarching starting point, like everybody I get called by journalists and people.. 1/
#APPGCoronavirus #LongCovid
“All the time, ‘are we there yet? Is it over? Has Omicron saved us?’ And of relevance for today, a pandemic is a fluid progression, there isn’t a day when it’s over and we’ve been through many phases and many variants and all of the countries are interlinked.” 2/
“It could still be a very long and bumpy road. In the UK, the situation at the moment appears better under Omicron and more hopeful than it did under Delta. But just to remind you in terms of the discussion we’re having today.. 3/
Read 25 tweets
Jan 18
🗣Ravi Veriah Jacques:
“I know particularly, early on in the illness it was just incredibly difficult to go from being an active person in their 20s to spending all of my time in bed. It was probably one of the most depressing periods of my life” 1/
#APPGCoronavirus #LongCovid
“Because I had no idea whether I’d get better, it went on for days and then weeks and then months and there was no change and I was completely despairing. I thought this would be my life, while I had to watch for the rest of my life, my friends would live the life.. 2/
“I was supposed to live whilst I’d be stuck in bed. Overtime I did learn how to live with Long Covid and for me that’s been very much believing that I’ll get better, even if the evidence doesn’t exist. I think for me I really have to believe that someday I’ll get my life back.”3/
Read 5 tweets
Jan 18
🗣Colin & Rosie Pidgeon:
“If I’m honest some days she seems worse than a couple of weeks ago. I don’t know if that’s because she’s abandoned hope and that’s a very hard thing to see in your child. She’s on 2 different sets of antidepressants” 1/
#APPGCoronavirus #LongCovid
“Does it feel like she’s getting better? No it doesn’t. I can’t answer it in any other way than that. When we look around and we see people like Ravi and Rebecca who’ve been struggling with this for months upon months, upon months, it’s scary.” 2/
“On the other hand we do know that people do get better, but we tend not to see them because the people who are tweeting about this or who are on Facebook talking about it tend to be that group of people who haven’t got better and there are an awful lot of them.” 3/
Read 5 tweets

Did Thread Reader help you today?

Support us! We are indie developers!


This site is made by just two indie developers on a laptop doing marketing, support and development! Read more about the story.

Become a Premium Member ($3/month or $30/year) and get exclusive features!

Become Premium

Too expensive? Make a small donation by buying us coffee ($5) or help with server cost ($10)

Donate via Paypal

Or Donate anonymously using crypto!

Ethereum

0xfe58350B80634f60Fa6Dc149a72b4DFbc17D341E copy

Bitcoin

3ATGMxNzCUFzxpMCHL5sWSt4DVtS8UqXpi copy

Thank you for your support!

Follow Us on Twitter!

:(