We’re concerned the Government have announced plans to bring forward the scrapping of isolation rules in England and know how much anxiety and anger it will cause for people in our community.

🧵1/5
We’re yet to see the Government set out their plan describing how the country will learn to live with Covid, specifically how people with blood cancer and others who are immunocompromised will be able to return to a normal life.

2/5
That plan must include additional support for our community including employment support & making it as easy as possible to access vital Covid treatments.

Ministers also need to ensure the public know that there are 500,000 in the UK for whom the vaccine is less effective..

3/5
...and therefore are not as ‘free’ as everyone else.

It is reckless for the Secretary of State to say that this change will makes us the ‘freest country in Europe’ as it will mean the opposite for anyone less protected by vaccination.

4/5
Throughout the pandemic, we’ve called for someone in Government to take responsibility for the immunocompromised and our calls have been ignored.

Now more than ever, it’s vital this happens for our community to get the support they need.

5/5

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More from @bloodcancer_uk

Feb 8
This is the news we like to hear! 🙌 🎉

Two people with leukemia who were first to receive CAR-T cell therapy remain “cured” after 10 years. ❤️
...Since then, this treatment has been approved in the UK for some people with leukaemia and types of lymphoma. It is also currently being looked at as a potential treatment for people with myeloma too 🩸
Thanks to your kind donations, we’re able to fund dedicated researchers like Professor Waseem Quasim's work aims to create a more universal CAR-T cell therapy. His research could lead to people with other blood cancers benefiting from this treatment in the future.
Read 4 tweets
Jul 13, 2021
1/ Last night, the Govt issued new guidance for everyone who is clinically extremely vulnerable, but we need specific support for 500,000 people within the group who have compromised immune system and who, as this guidance recognises, the vaccines may not work as well for.
2/ If the Government thinks this constitutes adequate support for people with blood cancer at a time when many of them are hugely worried about the spread of the virus, I am afraid we can add it to the long list of times the Government has let them down.
3/ This guidance contains little by way of practical support for people with blood cancer as they try to keep safe over the difficult weeks ahead.
Read 10 tweets
Jul 10, 2021
1/ @PHE_uk has now added a line to its press release to make clear immunocompromised people may not respond as well to covid vaccines.
2/ We’re pleased to see this. While there are aspects of its press release that are still misleading, it is good they have at least now acknowledged there is still lots of uncertainty about vaccine efficacy in immunocompromised people.
3/ But with journalists having already covered the press release, there will be lots of people with blood cancer who may now have the wrong impression. It is vital @PHE_uk publicly acknowledges its error and writes to every journalist who has covered the story.
Read 6 tweets
Jul 9, 2021
⚠️A press release and several articles have been published this afternoon with misleading information about how the COVID vaccines “work well” for people who are immunocompromised.

Thread 👇 (1/6)
The study they refer to groups all “immunocompromised” people together, of which vaccine response is only looked at in a small number of people. (2/6)
We don’t know whether this group includes people with blood cancer, and it will include people with other conditions such as Crohn’s and multiple sclerosis.

These diseases all affect the immune system in very different ways. (3/6)
Read 6 tweets
Jul 7, 2021
🏴󠁧󠁢󠁥󠁮󠁧󠁿🇩🇰 As we all get ready for #ENGDEN, we’re thinking back to 3 years ago, when @England were also playing on a Wednesday in a major semi-final.

Our #WasitcoatWednesday took the country by storm! ⚡️

mirror.co.uk/interactives/w…
Read 14 tweets
Jul 5, 2021
1/ Many of you will be concerned about what this evening’s announcement that restrictions in England will be lifted on July 19 means for you.
2/ People with blood cancer are unlikely to have got as much protection from the vaccines as people without cancer, and so many of them will be worried about whether lifting restrictions is sensible at a time when the infection rate is rising.
3/ Lots of you have also told us it’s been great to start getting back to normal over the last couple of months, whether that’s been going shopping or meeting friends outdoors or at outdoor seating at pubs and cafes.
Read 7 tweets

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