1/ @PHE_uk has now added a line to its press release to make clear immunocompromised people may not respond as well to covid vaccines.
2/ We’re pleased to see this. While there are aspects of its press release that are still misleading, it is good they have at least now acknowledged there is still lots of uncertainty about vaccine efficacy in immunocompromised people.
3/ But with journalists having already covered the press release, there will be lots of people with blood cancer who may now have the wrong impression. It is vital @PHE_uk publicly acknowledges its error and writes to every journalist who has covered the story.
4/ The problems with this press release have reinforced how important it is that every person with blood cancer is given the facts about vaccine efficacy so they can make their own informed choices.
5/ This week, @sajidjavid assured Parliament this would happen but we are still waiting for the details of how and when. For every day of delay, more lives are being put at risk.
6/ One final point: there are questions about vaccine efficacy in blood cancer, but we STRONGLY advise people with blood cancer to get the vaccine unless their clinician tells them not to. Even if there is a lower chance/degree of protection, it would still be well worth having.

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More from @bloodcancer_uk

13 Jul
1/ Last night, the Govt issued new guidance for everyone who is clinically extremely vulnerable, but we need specific support for 500,000 people within the group who have compromised immune system and who, as this guidance recognises, the vaccines may not work as well for.
2/ If the Government thinks this constitutes adequate support for people with blood cancer at a time when many of them are hugely worried about the spread of the virus, I am afraid we can add it to the long list of times the Government has let them down.
3/ This guidance contains little by way of practical support for people with blood cancer as they try to keep safe over the difficult weeks ahead.
Read 10 tweets
9 Jul
⚠️A press release and several articles have been published this afternoon with misleading information about how the COVID vaccines “work well” for people who are immunocompromised.

Thread 👇 (1/6)
The study they refer to groups all “immunocompromised” people together, of which vaccine response is only looked at in a small number of people. (2/6)
We don’t know whether this group includes people with blood cancer, and it will include people with other conditions such as Crohn’s and multiple sclerosis.

These diseases all affect the immune system in very different ways. (3/6)
Read 6 tweets
7 Jul
🏴󠁧󠁢󠁥󠁮󠁧󠁿🇩🇰 As we all get ready for #ENGDEN, we’re thinking back to 3 years ago, when @England were also playing on a Wednesday in a major semi-final.

Our #WasitcoatWednesday took the country by storm! ⚡️

mirror.co.uk/interactives/w…
Read 14 tweets
5 Jul
1/ Many of you will be concerned about what this evening’s announcement that restrictions in England will be lifted on July 19 means for you.
2/ People with blood cancer are unlikely to have got as much protection from the vaccines as people without cancer, and so many of them will be worried about whether lifting restrictions is sensible at a time when the infection rate is rising.
3/ Lots of you have also told us it’s been great to start getting back to normal over the last couple of months, whether that’s been going shopping or meeting friends outdoors or at outdoor seating at pubs and cafes.
Read 7 tweets
3 Jul
💬 "My daughter Emma died tragically of #leukaemia aged just 7 months in 2012. Being a bereaved parent is a uniquely awful experience, I have found losing a child to cancer particularly traumatic. The isolation I have felt is unimaginable.”

#NationalBereavedParentsDay Image
"What does help me is Emma having a legacy. We do this through our fundraising for Blood Cancer UK and have created Team Emma who do events in her memory.”
"The hardest thing for me is that Emma was my only child, it took me a long time to say this but the most important thing is remembering I am still a mum. I will always be Emma’s mum and I will always be so incredibly proud of her amazing spirit."
Read 6 tweets
29 May
It's #ResearchSpotlight time! Today, we're shining the spotlight on Professor Francesco Forconi...

🔬 Follicular lymphoma and diffuse large B cell lymphoma (DLBCL) are the two most common types of non-Hodgkin #lymphoma. Image
We can treat this disease, but many treatments have harsh side effects.

💊 Professor Forconi from the University of Southampton wants to find better ways to treat these diseases.
🏷️ The team are studying ‘tags’ found on the surface of lymphoma cells, which they think tell the immune system to ignore the cancer cells. This means cancerous cells are not destroyed and are allowed to divide and grow in numbers.
Read 6 tweets

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