I get angry everyday over the toxicity of childhood cancer drugs. Beans died of an infection she got while on harsh chemo. Everyday, we personally hear of more treatment deaths or complications.
You do it to save your kid's life. You have no other choice. But kids come last to the world of drug development. If you've ever seen a child suffer through chemo, you can't be the same person after it. TeamBeansMarathon.com
Kids go deaf from chemo, or they have severe developmental delays. Some get cancers later in life, other kids are never the same after harsh radiation to save their lives. We CAN and MUST do better.
same after severe
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We never got a February with Francesca, I think part of it is why it hit me so hard on Valentine's Day. Buying a little balloon for her tree, I just wish we were all here together w/her and Talia. With each new memory with Talia, each new photo – I take so many! - I know that...
we get farther from Beans' life. I kept so few photos of 2021 so I could scroll back to my Beans easier. I'm still adjusting to this new life we have. Having a new baby doesn't erase the pain. But I feel such love for Talia. It's such effortless love.
I honestly don't know how I survived. But we just do after Beans died and we didn't have Talia. I cry for Beans, but Talia has gifted me something I thought I lost. We read Beans' such sweet books and sang such sweet songs. I thought for a long time that stuff died w/Beans. But..
Just today I was on a call with the head of the program of all of the amazing labs and research at Dana-Farber this money is going to. This is hundreds of thousands of dollars for clinical trials and research that wouldn’t be there without you! TeamBeansMarathon.com
Infant brain cancer is extremely under refunded in terms of the money needed. Clinical trials and re-search takes years they cost hundreds of thousands and millions of dollars. Some doctors spend upwards of 70% of the time hunting for funding instead of in their labs.