What radical medical mistrust in the patient as a teller of her experience does, is make the patient question herself. Because she knows her experience is real, she’ll only question herself a bit. But that bit matters, because it puts in doubt that up is up and down is down.
Doubting an obvious truth about your body is more conducive to trauma than healing.
The BPS argument says that ME patients questioning their illness is a good thing. But this is a sleight of hand. What it really asks isn’t that patients question their illness, but that they question their sense of reality.
What the BPS argument asks of ME patients is that they question their sense of reality 30 years after their sense of reality has been vindicated by biological research. It’s not an argument but an epic and ethically gross medical face plant.
#pwME
#pwME
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