Banjot Kaur Profile picture
Mar 1 16 tweets 4 min read
UNTIMELY death of a loved one, even if it has happened more than a decade ago, is an extremely difficult fact to come to terms with. Two days ago a friend and I, out of nowhere, went discussing about last 11 days of another friend who died for want of a liver transplant+
She was our batchmate during graduation at a Varanasi univ. She continued to pursue Master’s from there, I moved to Delhi. We were 21. One fine day during our PG days, we got to know she was suffering from liver cirrhosis—otherwise a totally fit person.
This was 4 days after she got was with ‘jaundice' and we kept talking—we thought it would be just fine.

4 days later got a call saying ur friend has bcm unconsciousness from somebody who knew her. I dialled friends in the univ.With their help she got admitted at the varsity hosp
Ws cont talking to friends taking care of her in hosp. Literally every few minutes we spoke. On the 2nd day itself, doctors told us a liver transplant would be reqd. We decided to go looking for a facility which did that. Had not heard of this term till then. A Google+
search revealed the name of a famous surgeon. Called at the reception of the hosp and got his cell number. At 7.05 nxt morn, I called him up.
He said Rs 30L would be reqd. This was in Dec 2009. Told him we were students. My friend's dad had passed away 2 yrs before--she n her+
mother were surviving on a modest income. The only way left to arrange 30L was to beg. All friends went begging whichever way we could. Two of us skipped our semester exams--whatever it meant. We begged far and wide.

Meanwhile, went to a prominent hosp in Delhi that is govt-run
Waited outside OPD of the doc concerned for hours. As he came out, I folded my hands to let me have his 5 mins 2 discuss the case which I knew well. He ws kind enough to talk. He said the hosp had a long queue if I ws looking for an organ frm dead. We had a donor. But live+
Organ transplant was not available there. The only way was to approach the same hosp and the same doc with whom I had spoken a day before. It ws back to 30L. Our begging continued, her condition also continued to deteriorate. Docs in Vns hosp, some I would say, would mock at us.+
'They are trying to save somebody who is dead'. Their thoughts, their words,their expressions--all are still so fresh in our minds.
They stood vindicated. We lost her on Dec 21, 2009. We lost her bcoz we couldn't arrange Rs 30L. Could arrange only 3L.
A 21-yr-old gone in 11 days
This is not just my friend's story. This is also not the complete story--the shortest vrsion. But it still haunts us.
2 days ago, the phone call was just to discuss healthcare in general. Unintentionally, he went talking, in details, about what I still did not know of the 11 days
From the ward number to 'clear the passage'.

If this has rattled me to the core, I shudder to think what would be happening to those who lost their loved ones during 2nd wave of #Covid for the want of healthcare. Some families lost more than one+
It is just not the loss that haunts you; the guilt of not doing enough, is too much to bear throughout the life.

And, therefore, when Lancet released 'Value of Death' , I just had to ask this to Dr M R Rajagopal @mrraj47 while interviewing him.+
science.thewire.in/health/covid-1…
'During India’s second COVID-19 wave, almost entire families got wiped out in certain cases. Did we fail by disallowing them to grieve with their relatives, and leave them to grieve alone?]

'Absolutely. Absolutely. Absolutely', Dr Rajagopal said.
Death will happen but what kills the people left behind is its untimeliness+the guilt of not doing enough to save the dying.
The intention of writing this is not catharsis. But maybe asking ourselves to think about the people in our proximity who lost their loved ones in 2nd wave
I hv always had this guilt that as a society we have just forgotten about them. We hv pushed them to some remote space that we just don't want to see.

Governments had got nothing to do with them; will have nothing to do. But how can WE become so oblivious to a person next-door?
'Move on', the friend on the call said, was a very cruel term. How could you ask somebody to just forget everything and move on?

At best, you can help that person to 'move along'--with the memories. With the pain of loss and guilt too, accepting it as a real, routine phenomenon

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More from @Banjotkaur

Mar 3
TRUST DRUG CONTROLLER: Paul's response in @MoHFW_INDIA press conference today, responding to a question why no data in public domain on #Corbevax
@TheWireScience
Thanks @monikareporter for asking a pointed question.
Paul: "Corbevax, clearly, the EUA has been given for adult and children. Be rest assured that the data has been by drug regulator. Be also rest assured for both these groups is being reviewed by the NTAGI because we work in tandem."+
Read 7 tweets
Dec 4, 2020
At times, one has to write just to record for the history. That, a country's regulator invites media for webinar on clinical trials and when a question is asked, the reply is this 👇
"My request was to limit the question regarding understanding the processes involved. About the specifics of the things you are questioning, there are forums…there are weekly press conferences by department / ministry. This question can be asked there."
downtoearth.org.in/news/health/dr…
Other issues related to CTs which were asked but were not taken up due to 'paucity of time':

The composition of ethics committees of institutions where these trials are going on

The role Central Drugs Standard Control Organisation’s own subject expert committee
Read 4 tweets
Dec 3, 2020
So a media report says #DCGI has refuted any causal link between the serious adverse event (SAE) and #SII COVID vaccine trial participant. When we posed ques to the health ministry secy on December 1, he asked us to look into New Drugs and Clinical Trial Rules, 2019 (1/n)
What these Rules say (in case the death hasn't occurred)
1. The sponsor and the investigator shall forward their reports on an SAE to the Central Licencing Authority (DCGI), ethics committee and the head of the institution where the trial was conducted within 14 days of SAE(2/n)
2. The ethics committee shall forward the report and compensation to be given by the sponsor within 30 days of knowing that the SAE had occurred.
3. The DCGI shall pass an order or constitute an expert committee. (3/n)
Read 7 tweets
Apr 4, 2020
We know the idea of asking reporters to put quests on @MoHFW_INDIA WA group before #pressers has been farcical. Not only quests are cherry-picked, hardly 1 or 2 are taken up. Here's a thread of quests which went #unanswered on #Apr_3. #IndiaFightsCoronavirus by #GaggingPress.
1.Out of all the tests done in India so far, can Dr Gangakhedkar clarify how many individual people been tested,and how many second, third, fourth tests etc have been done?- Some states have announced they will expand testing criteria from ICMR's criteria. Are they allowed?
2. Will those positive results be accepted by the Centre?
3. How many ILI and SARI patients come up in hospitals across the country over the last two weeks?Also, how many samples of such patient have sentinel surveillance been conducted on?
4. How many Docs are tested positive
Read 15 tweets

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