Your child may have chronic pain and not tell you because they thought everyone feels like that, and they just have to push through.
Your child may have chronic fatigue and they told you they were tired several times when you had things for them to do, but you said, "You can't be tired already, the day has just started."
Your child may know they are different from other children and constantly be trying to figure out why instructions that work for others don't work for them, but you chose to hide their diagnosis from them instead of equipping them with understanding.
Your child may have many symptoms that don't fit that diagnosis, but you are using that one diagnosis to explain everything, and you're calling it all 'behaviour'.
Who taught you to think like this?
Do adults who went through all these things in childhood say that having a parent with your way of thinking is helpful?
Who taught you this fear?
Maybe this happened to you too, and now you're doing the same to your child?
'Growing pains'. That term has come up over and over in quote retweets and replies to this thread.

Many people have said that their parents and childhood doctors dismissed their pain as growing pains, and how the pain persisted into adulthood.
So... shall we talk about 'growing pains'? Here's a thread, and a rabbithole.

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More from @ekverstania

Mar 4
It's not 'growing pains'. There's no such thing.

It's PAEDIATRIC PAIN and it is NOT a normal part of growing up. It hurts because something is wrong.

You should have been believed. You should have had support.
Many people who have responded to this thread had symptoms of Ehlers-Danlos Syndrome since childhood.

Ehlers-Danlos Syndrome is thought of as a rare disease, but it's not really that rare. It's just rarely diagnosed, and you can see why: they think you're faking or imagining.
There is an actual Coalition Against Paediatric Pain.

Believe the children.

tcapp.org/about-tcapp/
Read 45 tweets
Feb 17
I have a question...

Background:
A year or so ago a person diagnosed with BPD told me what it was like, and I was shocked and filled with compassion at the immensity of the experience.
Then, months later, having forgotten about that a bit, I heard someone with temporal lobe epilepsy describe it and I was similarly shocked.
Read 5 tweets
Jan 6
Not everyone understands why people who have been through ABA call it torture if they haven't been shocked like at the Judge Rotenberg Center.
If you can't understand how being 26 years old and spending 25 years deprived of communication whilst treated as someone who is intellectually disabled and unmotivated is torturous, then maybe you need to learn a bit more about empathy first.
This treatment is NOT suitable for someone who is intellectually disabled, nor is it suitable for a nonspeaker who isn't.
Read 5 tweets
Jan 6
[THREAD] ABA AND BEHAVIOURISM

As we move to #BanABA, it's becoming clear that we need to educate ourselves and each other about what ABA actually is and what practitioners believe, otherwise people (even autistic people) may be confused about why it's abusive.
This morning one of my autistic friends told me that he attends an autism centre where people are very nice to him, and where they do PBS (a form of ABA) on the nonspeaking residents. They don't do PBS on him, he says.
How can they be abusing anyone if they're such nice people, he asks?
Read 10 tweets
Jan 5
IDEAS ON AUTISTIC ADVOCACY FOR 2022 AND BEYOND T[THREAD]
Religious history provides a number of useful metaphors for what I want to say. These metaphors do not require you to accept the religion, they're more like hooks or mnemonic aids, so I'll be using them outside of their original context.
"And no one pours new wine into old wineskins. Otherwise, the wine will burst the skins, and both the wine and the wineskins will be ruined. No, they pour new wine into new wineskins."

Mark 2:22
Read 10 tweets
Jan 5
[THREAD] TOXIC POSITIVITY MAKES ME BELLIGERENT
I just need to see someone saying "You got this" to SOMEONE ELSE to make me want to punch someone.

Reminds me of times when I wasn't coping AT ALL and I was told I can handle it.
No, I don't want to hear about how that saying works for YOU. I am in a bad mood.
Read 7 tweets

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